Ned's Story

My son Ned is 8yrs old and has an undiagnosed medical condtion. He was initially born with hirshsprungs disease and then we found out he had microcephaly, along with unable to gain weight, a severe intellectual disability and another few other trivial problems.
At 8yrs old he only weights 16kg.
I am trying to raise money for a new blood test which costs $4,500 and can possible go up to $10,000 if I need to be tested too.
This one blood test has the potential to diagnose my son and even if the results show nothing rule out hundreds if not thousands of syndromes and diseases.
The future is unknown for him and if we could get a little insight to whats to come, it would be amazing.
This one test could give us the knowledge to look out for other problems that may arise such as liver and kidney failure, epilepsy and in some syndromes or diseases death.
This is basically our last avenue.
If anyone could donate even the smallest amount of money, we would be extremely thankful and even if you are unable to donate please just share this campaign.
It would take some of the stress off our family.

Thankyou,
Ned's mum (Isobel)