We’ve spent months running from doctor to doctor in south Florida searching for a diagnosis and treatment. It’s been a nightmare, given that some physicians suggest one illness while others tell us it is something else. I’ve been researching his symptoms and found a doctor in Omaha, Nebraska who is a specialist in the two probable disorders he has: an invisible syndrome called Ehlers Danlos and Brittle Bone. Both are connective tissue disorders; one affects the joints and ligaments, and the other the bones.
The purpose of this fund was to help us see this specialist in Nebraska, at the children’s hospital in Omaha. We did go on March 24 to have genetic testing done to confirm his diagnosis, and have extensive testing that insurance does not cover, and examinations. The doctors now can accurately diagnose my son when the results come back in 6 weeks, and hopefully treat him so he will get out of the wheelchair and walk again. We feel this trip was vital and a last resort to help Ben. Now we have a lot of medical bills expected to come from this trip, other testing that was needed that insurance will not cover on top of what I am required to pay.
Please pray that we find the help we need. Any financial assistance – which is for the medical expenses, will alleviate some of our burdens so we can fully concentrate on getting Ben well again. Thank you for your generosity and support. We truly appreciate whatever you can offer.
Cheryl, Al and Ben Gonzalez
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