Kelsie & Layla's Insulin Pump &CGM

I am a mom of a child with Type 1 Diabetes. Our family is fortunate enough to have good insurance that covers our supplies , especially since those supplies can be so expensive. We know a family with 2 girls - both of which fight this scary disease. 

This is what Kelsie & Layla's mom has to say...

On November 2nd 2011, we brought Kelsie (then 3 years old) to the emergency room. We had tested her blood sugar after her teacher told us she was concerned Kelsie was showing signs of Type 1 Diabetes. When we tested her she was at almost 500, and once we got to the hospital it was so high that their meter couldn't even read it. Even though there was no other reason why her blood sugar would be so high I refused to believe that she had diabetes.



I remember the nurse coming in after us being there for almost four hours to give her the first shot of insulin. I still looked at her, completely blind to what was going on and asked, "what does she have?". That was the worst night of my life. It took months for us to get into a comfortable schedule. Kelsie would scream and cry every time we came near her for her shot. I would have to wait for my husband to get home from work to help me hold her down because she was absolutely hysterical.

It's been three years since Kelsie was diagnosed, and she continues to amaze me every day. She's so brave and never complains when we prick her fingers almost 9 times a day, or when we give her shots twice a day. She never argues when we tell her she can't eat something because of her diabetes.

Our younger daughter Layla, who is 19 months old, was also diagnosed with Type 1 Diabetes on February 10th of this year. I knew there would be a possibility that she could also be diabetic, but never considered it could actually happen...especially this young.

This time around, I thought "we've got this, we've been here before" but that wasn't the case. Since Layla is unable to tell us how she's feeling it's made it much scarier. I find myself watching her on her monitor, just to make sure she moves when she's sleeping. A few times, I got so nervous I'd make noise outside of her room until I saw her move to make sure she was ok. It's also much harder to have to tell her "no" when she asks for certain foods since she does not really understand what is happening to her.

Aside from all of this, it has only been about 3 weeks since she had started on insulin and she's already following in her sisters footsteps. She hardly ever cries when we give her shots twice a day and when you tell her it's time to test she'll give her finger to you.
I am in awe of my children, how they can both go through this and still always have a smile on their face. These girls are our hero's and our world.

Hopefully, someday, there will be a cure for Type 1 Diabetes. Until then, we will do everything we can to support ours girls (and everyone else with Type 1) and make sure we are doing to best we can to make sure they live a healthy, happy life.

With the help of a CGM (Continuous Glucose Monitor), we will be able to always know what their blood sugar is at, and not have to worry about the sudden lows or highs. This is especially beneficial to Layla being so young.

The insulin pumps will also help us better regulate the girls' blood sugar levels and let them have more freedom with what and when they eat.

Unfortunately, our insurance does not cover the pumps and we have not yet been able to afford to get these things for Kelsie (and now Layla) and the CGM is another added expense on top of everything else. We are hoping to be able to provide our girls with both of these to help ensure we are providing them with as many benefits as we can in their fight against diabetes.

Thank you so much for reading this and thank you for your support!
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Organizer

Jessica Lynn Mosher 
Organizer
Glen Rock, RI
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