Hi, my name is Nareena and I am raising funds to help with the unexpected challenges with stage 4 endometriosis and the impacts this disease has had on me and my family. It’s been a hard on my mental health, physically, and financially. I am unable to work and have been bed ridden for weeks at a time. I have gone through all my savings to cover costs of living and basic medical expenses. My husband has had to take medical leave to help me. We are truly at our lowest and as hard as it is, we need to ask for help.

history:

I’ve had endometriosis for a decade and it has been managed with surgery and minimal complications. I’m have always been able to work through the pain and discomfort until August 2024.

current situation:

last summer I started to feel my endo symptoms return. It is a long process to get re-referred to specialists and to try and get imaging that will show the endo growth. I was on a waitlist for a specialist for almost a year. During that time my symptoms have become debilitating. I do not go outside most days, struggle with severe pain, and depression. while waiting for an appointment I’ve been steadily getting sicker and for the last 4 months I have been unable to function. I’ve been going through all savings to afford rent, groceries, pain management, hormone treatment. I have been unable to afford to do any other recommended treatments like physiotherapy or counselling to help with chronic pain.

prognosis and treatment plan:

on July 24th, 2025 I was able to see my specialist and come up with a diagnosis and treatment plan.

My stage 4 endometriosis has spread since my last surgery (the last surgery removed my right ovary and cleaned up endometriosis throughout my abdomen and uterus). It is now impacting my left ovary, bowels and possible bladder. Resulting in severe pain that is only managed with strong pain medication, which is expensive, $2-300 per month.

The treatment plan includes new endometriosis treatment with estrogen blockers and progesterone treatment. This runs over $700 per month. Which will be ongoing.

I am on the waitlist for surgery to remove the growths in three to four months. But until then I am unlikely to get any better.

physiotherapy and counselling for chronic pelvic pain has been recommended, but only 5 sessions are covered by MSP and I do not have any extended coverage as my husband’s plan would not cover me because I have this condition. These run $100-150 per session. I have also had massage therapy and acupuncture recommended, but those are also expensive treatments that I do not have coverage for.

The main challenge is that throughout the last year I have exhausted my savings and have accumulated a bit of debt dealing with this. The treatment involves costly medication, therapy, and recovery time.

I have also discovered I am no longer able to have children, which is a sad reality for us now.

I am feeling hopeless and lost. I do not qualify for any disability benefits or EI medical benefits either. So I am left with few options. That is why as hard as it is to ask, I have to see if friends and family can help us out.

I am so sorry to have to ask for your help, but I really do need it.

thank you for taking a read through my story and I appreciate any shares or donations you are able to make.

with love