Emma's Story

Recently Emma received the devastating news that, like her father, she carries the rare genetic disease, familial ALS. For many, ALS may trigger memories of the Ice Bucket Challenge that went viral on social media a few years ago - but for Emma, ALS means facing a progressive loss of muscle control, where everyday tasks gradually become more challenging, impacting her independence and quality of life. With her trademark sense of humour, grit, and determination, she has set her sights on navigating life with the disease. Although there is no known cure, a trial therapy offers hope to extend and improve her quality of life. This site is dedicated to sharing the groundbreaking treatment aimed at extending Emma's life and inspiring fundraising efforts from her friends and family, who are working together to create a more accessible home for Emma, James, and their children Hattie (15), Oscar (13) and Darcy (10)

Our mission is to create a home for Emma, James, and the children that enables Emma to remain fiercely independent. However, as her muscles grow weaker, she will need some assistance - and this is where we need your help. There are countless ways in which small adjustments can support Emma in her daily lite

Creating a Safe and Accessible Home for Emma.

The modifications needed will allow Emma to navigate everyday life with dignity and comfort. We hope to install ramps and stairlifts, widen doorways, and add grab bars in the bathroom. Adjustable furniture, non-slip flooring, and smart home devices will enhance her safety and independence. The total cost of these changes is approximately £60,000, and with your support and that of the MND Association, we can raise the funds needed to create a nurturing environment for our lovely girl. Thank you for helping us reach this goal!