Terminate Carina’s Tachycardia

My name is Carina and I was diagnosed with POTS - Postural Orthostatic Tachycardia Syndrome, a form a dysautonomia, 2 years ago. Since then I have spent many months bedbound, seen countless doctors, endured many medical tests, and tried many treatments. Recently I found a dysautonomia specialist cardiologist in my area and he has prescribed me many different drugs to ease the symptoms that come from autonomic dysfunction (chronic pain, tachycardia, low blood pressure, hypovolemia, fainting, digestive issues, and fatigue). Chasing symptoms does not provide a cure but it makes my illness more bearable and has allowed me to consider returning to university after almost 8 months of medical absence.
This month I began taking Corlanor which is a drug typically used for heart failure patients, as it works by increasing the stroke volume of blood in each heart beat and reduces heart rate. Since starting this medication, my resting heart rate has reduced dramatically from about 120-150 bpm to a more normal pulse of 80-115 bpm. Reducing the tachycardia has allowed me to return to activities and prevent fainting as often. However, as this is an experimental use for this drug, it was denied by my insurance, and it is a very expensive drug,(at $20 per dose!). Along with other medical expenses such as supplements, compounded medications, electrolyte replacements, and traveling to specialists and weekly infusions, my family and I cannot afford to pay out of pocket for my prescription. After feeling the positive effects of this drug for a couple of weeks (on a sample supply) I really don’t want to return to the level of tachycardia that I have experienced for the past 2 years. This drug is a game changer for me and any donations would be greatly appreciated. Thank you very much! 

Donations

  • Suzanne Thompson 
    • $40 
    • 29 mos
  • Debra Newsome  
    • $50 
    • 29 mos
  • Nanette Johnson  
    • $50 
    • 29 mos
  • Carissa Collins  
    • $160 
    • 30 mos
  • Elysia Long  
    • $20 
    • 31 mos
See all

Organizer

Carina Fuller 
Organizer
Fairfield, CA
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