He was diagnosed with crohns at 11 and has been fighting so hard we have had ups and downs from nasal feeding tubes to just a liquid diet, but he still kept going to school. He even got better GCSE's than me and my other brother put together. He works so hard to live a normal life.
Now we have had a massive down, his current treatment has stopped working (humeria 40mg injections every week using an epipen into his stomach). This treatment had worked for over 3 years helping him to live a normal or as normal a life as possible eg; holding down a full time job as well as being an amazing uncle to my children, and a great little brother. The thing is strangers seeing him wouldn't even know he was ill, he hides it so well.
Without the new medication he will become so unwell that he could be house bound or even in hospital which is where he spend most of December and January.
Charlie has ulcers (like you and I could get in our mouths) throughout his entire colon. The blisters are now also spreading from his stomach up his wind pipe, this means that drinking and eating for him is unbelivably painful. The current medication was stopping these blisters and ulcers from getting worse and spreading. But with the medication now failing, they have spread so much so that he is loosing weight by the week. His body can now not obsorb any nurtients from the food he eats and he is now on a liquid supplerment. His colon is now so ulcerated that surgery is not even an option, Charlie now weighs a tiny 54kg.
If I now tell you he is 21 and over 6ft you will understand how ill he is.
The NHS have as good as written him off stateing that it is " NOT COST EFFECTIVE USE OF NHS FUNDS". to pay for the new treatment he needs. This was not just unbelievable but heart breaking to read.
Charlie's current medication which is NHS funded costs over 18k a year but that has stopped working. At 20k the new medication is just 2k difference, how much is my brothers life worth.
The new medication vedolizumab, he now need is the last resort. Even the NHS stated this in their letter,
The medication comes in the form of a infusion that Charlie will have to go into hospital to recieve through an IV every 6-8 weeks.
Charlie dosent want people feeling sorry for him or to pity him. He dosen't see why people would want to give money, just to help him. But I am asking for you to help show him that he is a young man that needs our help, He deserves to have and live a full life.
I cant tell my Children that uncle Charlie isn't here anymore for rides in his car, to buy them sweets or just sit and read them a book, Please help me so I dont have too. But also so that we all don't loose him out of our lives.
So yes I guess I am asking for your money not alot just 50p to anything you have laying around.
You can donate by either.
go fundme page card payments OR
PayPal [email redacted]
If you want any more information, you can email me cerrie (his big sis) on the above email address or message me or my mum Bea James Marshall on facebook
Your support means so much to our little family so please, keep sharing and Donate what you can every little helps. We need to make uncle Charles better xxxx
above is the gofundme page for charlie
Our Mum is already arranging with the hospital how to fund the first course of treatment, and will be paying for it herself. We need to raise 20k for the rest of his first years treatment,
Hopefully then we will have proved the medication is
"COST EFFECTIVE USE OF NHS FUNDS" and will fund his ongoing treatment.
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