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Mykenzie’s Big Heart Surgery at Boston Children’s
0% complete
$8,489 raised of $10K
51 donations
Mykenzie Grace Carro was born on 12-09-11 with HLHS and had to under go Open Heart Surgery at 5 days old. Than at 20 months old she had her 2nd Open Heart Surgery for Aortic Stenosis, Sub Aortic Membrane.
She has had some interventions since her last heart surgery. Now 9 years later without any major signs of complications, she now has progressed to needing her 3rd Open Heart Surgery. The regurgitation and leakage has progressed to an unsafe level. Her Aortic valve being so small and not growing with her heart has allowed these complications. It just isn’t big enough to do it’s daily functions like yours or mine.
At this time Boston Children’s & Phoenix Children’s have agreed that it is time to replace the valve. They do not believe that we have much time to get it replaced so they have decided that they will squeeze her in now next month August 23, 2023.
They are going to proform The Ross Procedure at Boston’s Children’s Hospital. This Procedure will allow Dr. Emani to replace her aortic valve with her Pulmonary valve. Than they will replace the Pulmonary valve with either a mechanical valve, a cadaver donor (conduit) or Homeographic valve.
As we are learning there is a lot of positives with this surgery. She will not be placed on blood thinners, she will be able to be a normal kid for the most part and participate in sport, outdoor activities and being a kid without all the fears. It could be possible that this could be the last time she would have to have her chest cracked open for a full blown Open Heart Surgery. Most interventions after The Ross Procedure especially on the pulmonary valve can be done through the Cath Lab.
As most of our friends and family already no we are scheduled to complete the adoption of our 7 year old niece and 15 year old nephew on August 15th 2023. We are trying with every inch of our hearts to make a difference in their lives and give them a forever home full of love and devotion just as we do with our own precious children. All of our children have been a gift to us from God. No matter what obstacles are thrown at us, our children come first, we always try to overcome and make sure they are safe just as we do with Mykenzie Grace.
We are trying to raise money that will be needed to get our family to Boston to receive the proper care for Mykenzie Grace and the Surgery to try and correct & fix this issue with her heart.
We are so extremely grateful to any and all who can help us in this very trying times.
She has had some interventions since her last heart surgery. Now 9 years later without any major signs of complications, she now has progressed to needing her 3rd Open Heart Surgery. The regurgitation and leakage has progressed to an unsafe level. Her Aortic valve being so small and not growing with her heart has allowed these complications. It just isn’t big enough to do it’s daily functions like yours or mine.
At this time Boston Children’s & Phoenix Children’s have agreed that it is time to replace the valve. They do not believe that we have much time to get it replaced so they have decided that they will squeeze her in now next month August 23, 2023.
They are going to proform The Ross Procedure at Boston’s Children’s Hospital. This Procedure will allow Dr. Emani to replace her aortic valve with her Pulmonary valve. Than they will replace the Pulmonary valve with either a mechanical valve, a cadaver donor (conduit) or Homeographic valve.
As we are learning there is a lot of positives with this surgery. She will not be placed on blood thinners, she will be able to be a normal kid for the most part and participate in sport, outdoor activities and being a kid without all the fears. It could be possible that this could be the last time she would have to have her chest cracked open for a full blown Open Heart Surgery. Most interventions after The Ross Procedure especially on the pulmonary valve can be done through the Cath Lab.
As most of our friends and family already no we are scheduled to complete the adoption of our 7 year old niece and 15 year old nephew on August 15th 2023. We are trying with every inch of our hearts to make a difference in their lives and give them a forever home full of love and devotion just as we do with our own precious children. All of our children have been a gift to us from God. No matter what obstacles are thrown at us, our children come first, we always try to overcome and make sure they are safe just as we do with Mykenzie Grace.
We are trying to raise money that will be needed to get our family to Boston to receive the proper care for Mykenzie Grace and the Surgery to try and correct & fix this issue with her heart.
We are so extremely grateful to any and all who can help us in this very trying times.