Mya’s LCH Journey Guide
This is the story of our sweet baby girl Mya Janelle Ortiz.
When our daughter turned a month old, she started to have bloody stools. Doctors believed this to be nothing more than a milk allergy. As time went on Mya started to develop more symptoms such as a rash on her abdomen and hands, decreased movement in her left leg, a lump on the top of her head, as well as her gums appearing to have some type of infection.
On August 26, 2022 our pediatrician suggested that my husband and I rush our daughter to Stanford Pediatric ER. A team of doctors worked on Mya for hours performing x-rays,ultrasounds, MRI’s, and lab work.
Around 2am a specialist came in to speak with us and informed us of their discovery. Our beautiful baby girl had several tumors throughout her body. They were located on her skull, spine, and left femur. We spent a week at the hospital so they could perform additional tests and run a biopsy.
Mya was diagnosed with LCH(langerhans cell histiocytosis) a rare cancer like disease that affects 1 in 200,000 kids. Due to the location of the tumors, Mya is considered a high risk patient.
On September 8, 2022 we found out the tumors were also in Myas lungs and liver. She was then scheduled to have a port placed on September 15, and start her first round of chemo.
Mya's chemo treatments will be minimum of a year. Her specialty team is located in Stanford, therefore, this involves unplanned trips to Stanford ER that can sometimes turn in to overnight or even weekly stays.
We would like to thank you all in advance for any and all support you provide. This includes keeping our baby girl in your daily prayers.
You can follow Myas journey on instagram:
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