Since that day she has been in chronic pain but in pain that confuses many doctors in WI sending us all over the state with multiple head scratches and I don't know's. Apparently Myah was born with Arnold Chiari malformation and until now any symptoms she had were identified as Chiari and had been dismissed with an unknown reason of occurance. Now it ought to all make sense, the severe pain, the left side numbness, hypersensitive, random loss of motor function, silent aspirations...these ought to all be related to this Chiri pressing on Myah's brain stem...or are they? Is there something else going on? Was that dreaded day back in July something else the Doctors in WI are missing?
We are going to find out! Myah has been accepted as a patient to Mayo Clinic in MN and now we are looking for help to get there. We leave Feb 6th and will Return Feb 12th if all goes as planned. The funds raised will help cover lodging, food, transportation and hopefully a wish come true for her 18th birthday, which is the 9th... A trip to the Mall of America, probably to get her nails done, lol!
You may be thinking Mall of America, birthday, why should we help that....If you were lucky enough to be served by Myah, have heard her deep belly laugh or are in any kind of relationship with her then you know that she deserves some special reward fit for a princess. See I'm a single mom with 4, 1 is grown and off on his own but I struggle to give my children the best of things or the most of things and if I can get Myah this one thing that she has longed for for so long then it will mean the world to me and to her. She is a special bright beautiful young lady and deserves the best! I really appreciate you and any support including a share! Thanks in advance.
- Mary Guse
- Tony / Shelly Hottenroth
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