Eoin's Camino for MSA Awareness
Donation protected
Help me raise awareness for Multiple Systems Atrophy 'MSA' by sponsoring my Camino De Santiago Pilgrimage.
After a two year delay I will finaly be walking the Camino in June 2022.
Thank you for visiting this page, please help me raise funds for two great charities that provide support for Multiple System Atrophy by clicking the Donate Now Button. 100% of all donantions will go directly to the charities listed below. Even the smallest donation is appreciated, Seriously. Thank you,
Eoin
Read My Story ....
Why I am walking the 800km Camino De Santiago and why I am asking for your help.
My mother Maura was caring, loving, and full of joy until her life changed in 2001 when she was diagnosed with Multiple System Atrophy. Mam raised 3 children, looked after her elderly mother, her 4 siblings, and ran a family business from our small home in Dublin. To say she was a strong woman was an understatement. Unfortunately, all the strength in the world couldn’t save her, and on the 3rd of January 2007 after 7 years of fighting against her progressively worsening health she passed away.
Multiple system atrophy (MSA) is a terminal progressive neurodegenerative disorder characterised by a combination of symptoms that affect both the autonomic nervous system (the part of the nervous system that controls involuntary action such as blood pressure or digestion) and movement. The symptoms reflect the progressive loss of function and death of different types of nerve cells in the brain and spinal cord. The prognosis for suffers is 5-10 years from diagnosis, there is no known cause or cure.
Mam fought a good fight over those difficult 7 years, along with my caring dad, sister, and brother we did what we could to support her. Mam first lost the power in her legs and arms, eventually needing a cane then a wheelchair to get around. Her movement went next along with her speech, her ability to communicate and eventually eat or hold her head up. She went from the most active independent person to a shell of herself who had to rely on other people to do the most basic and personal tasks. The worst thing about MSA is that it doesn’t slow the mind, just the body, up until her last days her mind was there, sharp as ever, still able to laugh at my stupid jokes but still afraid, still angry, sad and worst of all trapped in her own body.
Over the past 15 years I have thought a lot about MSA, about the frustrations we had supporting our mother, the lack of support from the healthcare system, the government, the basic lack of information about MSA, how to care for suffers and how to support their careers. I have found it difficult to think about that time as it brings back so much pain and frustration, but I want to do more, I want to help spread awareness of MSA, I want to help other people who are suffering from or supporting people living with this evil disease. My father who passed away in 2013 was a lover of hiking and often organised many charity walks when we were young, so with the support of my amazing fiancée and our lovely daughter, my family, friends and work colleagues I have decided to raise money by walking the 800km track of the Camino De Santiago in his footsteps, for my mother.
How you can help:
It would mean the world to me if you, my friends, colleagues or even someone I don't know can help me to raise funds for two very worthy charities who are helping people and their carer's with MSA to live a better life with dignity and to provide a bit of light in their darkness.
Please donate here - Even a small donation can make a big difference or share either of the links below to help spread awareness. Your support and contribution are very much appreciated! Thank you - Eoin
MSA Coalition
The Coalition provides critically important patient and care partner support, educational resources, and advocacy to increase awareness and to fight for issues important to the MSA community.
https://www.multiplesystematrophy.org/
MSA Trust UK & Ireland
Home Care Package (HCP) scheme is an administrative scheme, operated by the HSE. It aims to help people who need medium to high caring support to continue to live at home independently. The scheme is not means tested, and there is no charge or contribution to be paid for the services provided.
https://www.msatrust.org.uk/local-hub/home-care-package-ireland/
After a two year delay I will finaly be walking the Camino in June 2022.
Thank you for visiting this page, please help me raise funds for two great charities that provide support for Multiple System Atrophy by clicking the Donate Now Button. 100% of all donantions will go directly to the charities listed below. Even the smallest donation is appreciated, Seriously. Thank you,
Eoin
Read My Story ....
Why I am walking the 800km Camino De Santiago and why I am asking for your help.
My mother Maura was caring, loving, and full of joy until her life changed in 2001 when she was diagnosed with Multiple System Atrophy. Mam raised 3 children, looked after her elderly mother, her 4 siblings, and ran a family business from our small home in Dublin. To say she was a strong woman was an understatement. Unfortunately, all the strength in the world couldn’t save her, and on the 3rd of January 2007 after 7 years of fighting against her progressively worsening health she passed away.
Multiple system atrophy (MSA) is a terminal progressive neurodegenerative disorder characterised by a combination of symptoms that affect both the autonomic nervous system (the part of the nervous system that controls involuntary action such as blood pressure or digestion) and movement. The symptoms reflect the progressive loss of function and death of different types of nerve cells in the brain and spinal cord. The prognosis for suffers is 5-10 years from diagnosis, there is no known cause or cure.
Mam fought a good fight over those difficult 7 years, along with my caring dad, sister, and brother we did what we could to support her. Mam first lost the power in her legs and arms, eventually needing a cane then a wheelchair to get around. Her movement went next along with her speech, her ability to communicate and eventually eat or hold her head up. She went from the most active independent person to a shell of herself who had to rely on other people to do the most basic and personal tasks. The worst thing about MSA is that it doesn’t slow the mind, just the body, up until her last days her mind was there, sharp as ever, still able to laugh at my stupid jokes but still afraid, still angry, sad and worst of all trapped in her own body.
Over the past 15 years I have thought a lot about MSA, about the frustrations we had supporting our mother, the lack of support from the healthcare system, the government, the basic lack of information about MSA, how to care for suffers and how to support their careers. I have found it difficult to think about that time as it brings back so much pain and frustration, but I want to do more, I want to help spread awareness of MSA, I want to help other people who are suffering from or supporting people living with this evil disease. My father who passed away in 2013 was a lover of hiking and often organised many charity walks when we were young, so with the support of my amazing fiancée and our lovely daughter, my family, friends and work colleagues I have decided to raise money by walking the 800km track of the Camino De Santiago in his footsteps, for my mother.
How you can help:
It would mean the world to me if you, my friends, colleagues or even someone I don't know can help me to raise funds for two very worthy charities who are helping people and their carer's with MSA to live a better life with dignity and to provide a bit of light in their darkness.
Please donate here - Even a small donation can make a big difference or share either of the links below to help spread awareness. Your support and contribution are very much appreciated! Thank you - Eoin
MSA Coalition
The Coalition provides critically important patient and care partner support, educational resources, and advocacy to increase awareness and to fight for issues important to the MSA community.
https://www.multiplesystematrophy.org/
MSA Trust UK & Ireland
Home Care Package (HCP) scheme is an administrative scheme, operated by the HSE. It aims to help people who need medium to high caring support to continue to live at home independently. The scheme is not means tested, and there is no charge or contribution to be paid for the services provided.
https://www.msatrust.org.uk/local-hub/home-care-package-ireland/
Organizer
Eoin Keating
Organizer
Haymarket, NSW