Several months ago my Mom (Carol Sue) started to have a tingling feeling in her feet and fingers. She described it as feeling like walking on pins and needles. It was very painful until the numbness starting taking over as it went up her legs and hands. At this point, she is unable to walk as she doesn't have her balance and can no longer feel her feet. She has a hard time using her hands for even small tasks like taking a lid off her capstick.  She was just recently diagnosed with chronic inflammatory demyelinating polyneuropathy.  Which is basically when your immune system attacks your nervous system.

The treatment for CIDP is plasma exchange and because of Covid-19, the are recommending the treatments be done at home instead of in a health center. As you can imagine, this is expensive. $6,400 covers her first round which is quite aggressive (Four times the first week, two times the next few weeks) but will eventually taper off  to once a month. After the first round, her deductible will be met and her insurance will kick in paying a good portion of future treatments. This is something she will have to do the rest of her life.

Once she starts the treatments she may improve muscle strength, function and mobility, and minimize the shrinkage of muscles and tendons and distortions of the joints.

We need to get these treatments started ASAP to prevent it from continuing to spread.

I have shared a link below if you would like to learn more.

Thank you.

https://www.ninds.nih.gov/Disorders/all-Disorders/chronic-Inflammatory-Demyelinating-Polyneuropathy-CIDP-Information-Page