My Daughter Has Stickler Syndrome

Nevaeh Robinson was born with Stickler Syndrome. This syndrome runs in the family and causes physical abnormalities in the body. In Nevaeh's case she was born with poor eyesight, a cleft palate (sort of a hole at the top of the mouth) and poor hearing. Another symptom is sort of a flattened face shape. The treatments include surgeries to correct the eyesight and the cleft palate, and hearing aids for the hearing. I am a single mother of five children and can't afford to keep up with the costs of the surgeries. Any amount helps and thank you for any and all donations.