My CIDP Battle
Donation protected
Hello and thank you for reading about my journey. Starting January 2016, I begin to feel extremely tired and weak. More than usual. I am anemic and regularly receive blood transfusions so initially I thought the symptoms were due to that. But as the months went on, I knew something else was going on. I complained to my doctor who ignored my requests for further investigation. By May 2016, I had lost 20 pounds. At this point my doctor decided to give me a referral to see a neurologist who was not available for another month. I knew I wouldn't make it. I felt like my body was shutting down and my legs and arms felt heavy and weak.
June 6, 2016, was the last day I was able to drive and walk unassisted. I was shocked and overwhelmed by what was happening to by body. I was scared and worried. I called my family a few days later to come and pick me up. I could no longer walk and was trapped in my home. I went to my mother's home, still not sure what was happening or what to do. I called my doctor who wasn't available and didn't call back. So to the emergency room I went. I spent 2 weeks in the hospital undergoing numerous tests (Mri, Spinal tap, ultrasounds, CT scans, blood tests, etc) finally being diagnosed with Chronic Inflammatory DeMyelinating PolyNeuropathy. This disease is a nerve disorder that eats away at the protection coating of the nerves and axons. After being diagnosed I spent 2 weeks in Physical Rehabilitation and continue today. My gofundme need is for medical expenses , daily living and most importantly IVIG treatment sessions my insurance will not cover. This treatment consists of 10 day transfusions that cleans your blood and replaces your bad plasma with healthy plasma. This treatment is very expensive ($9,500 per treatment, 3 sessions required) Not being able to walk or hold things in my hands , I have not been able to work and have exhausted my bank savings. To date, I have been taking steroids to treat my CIDP which has hit a plateau and is no longer effective. Without the IVIG treatment my condition may reverse and put me back in a wheelchair or bed. I pray that you can help me with with this debilitating disease. I fight everyday to get better and my doctor's are impressed by my determination and commitment to battle CIDP. The good news about this disorder is that it doesn't have to be permanent. With the right treatment and therapy CIDP can go into remission which is my goal and prayer. I hope you can help. Thank you for reading my story.
God bless,
Dana
June 6, 2016, was the last day I was able to drive and walk unassisted. I was shocked and overwhelmed by what was happening to by body. I was scared and worried. I called my family a few days later to come and pick me up. I could no longer walk and was trapped in my home. I went to my mother's home, still not sure what was happening or what to do. I called my doctor who wasn't available and didn't call back. So to the emergency room I went. I spent 2 weeks in the hospital undergoing numerous tests (Mri, Spinal tap, ultrasounds, CT scans, blood tests, etc) finally being diagnosed with Chronic Inflammatory DeMyelinating PolyNeuropathy. This disease is a nerve disorder that eats away at the protection coating of the nerves and axons. After being diagnosed I spent 2 weeks in Physical Rehabilitation and continue today. My gofundme need is for medical expenses , daily living and most importantly IVIG treatment sessions my insurance will not cover. This treatment consists of 10 day transfusions that cleans your blood and replaces your bad plasma with healthy plasma. This treatment is very expensive ($9,500 per treatment, 3 sessions required) Not being able to walk or hold things in my hands , I have not been able to work and have exhausted my bank savings. To date, I have been taking steroids to treat my CIDP which has hit a plateau and is no longer effective. Without the IVIG treatment my condition may reverse and put me back in a wheelchair or bed. I pray that you can help me with with this debilitating disease. I fight everyday to get better and my doctor's are impressed by my determination and commitment to battle CIDP. The good news about this disorder is that it doesn't have to be permanent. With the right treatment and therapy CIDP can go into remission which is my goal and prayer. I hope you can help. Thank you for reading my story.
God bless,
Dana