#My Chronic Lyme Life

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#My Chronic Lyme Life

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Thank you Dr. Dietrich Klinghardt for validating that there is chronic lyme and it lives in the Biofilm that is in the facia tissue that surrounds your muscles, my biofilm is residing in my my lower back, my pelvis, the sides of my legs all the way down, making my legs feeling like they could shatter into a billion pieces. This disrupts nerves and the inflammation is extremely hard to keep down, which also cause the poor circulations. I also have other co-infections that keep me from having strength to get through a single day. Everything exhausts me.

I grabbed this blurb from an article that poses many possibilities, but how much would this type treatment actually cost?

To back track on my history I would like to explain the events that led up to my findings.

I went to my daddy for help; the one person that I never liked showing my weakness too, I was so ashamed, the disease was breaking me down left and right and up and down, and I had no evidence to prove other than my strange new feelings and loss of strength and exasperation.

My whole family had witnessed all of my changes whether I liked it or not, as long as I kept telling myself that if I shut off emotionally towards them, the secretly they would never have to feel pity or sad for me. My outbursts, would turn into faded memories.

One day when I was having a particular large spell of swelling pelvic pain, leg pain, lower back pain, neck pain creating a migraine. All the pain radiated throughout my entire body. In my gut and stomach I felt sharp twisting pain, it felt like snakes slithering through my too tight gut. I had moments when I couldn't feel circulation to my legs. He and my sister jumped in a car, we made a bed for me to try and be as comfortable as possible and delivered me to the Mayo Clinic in Phoenix, AR ER. They admitted me and did one procedure and then sent me on my way without helping me. We were so surprised, we were told I should make an appointment after we explained wehad drove all the way from Las Vegas. They never accepted my insurance and all my billing that cost thousands of dollars has gone into collections. That was a huge slap to my face, the doctor didn't care to take all of my previous medical history and two people to back it up and explain other things that I had forgotten or wasn't even aware of; they did not take the time to find out why I had such severe inflammation. It showed in blood tests, but to them it was non emergent. I had the correct insurance, I left the ER in a Panic, it overwhelmed me and became a full fledged panic attack, I needed help and after a long ass drive, the way back was way worse.

I have been irate at times and understanding of the mysteries of Lyme Disease and the various Doctors that dismissed me that I had pleaded with telling them the places that hurt; and was simlpy told I was making this pain up in my head, too many areas conflicted the doctors. Some released me and said they didn't know how they could help me...

I started to struggle with even pursuing other doctors, I did not trust them, because in the beginnig before the brain fog and the many other cognitive functions that now backfire, I knew in my core that there was somthing wrong with me and it was slowly distroying my life. The biggest struggle was trust. I shut out a lot of people, I didn't want them to experience the wrath of my feelings that would explode from my body. I went into a serious emotional mood and experienced secondary anger, also know as "Lyme Rage". Seriously, I have never cried and screamed and pleaded with the powers at be, so much in my entire life, my poor eyes needed a break, and currently still do. My nervous system has become so sensitve that certain stimuli overwhelms my mind, leading to shame and more pain. I made a choice to reach out to someone that wasn't involved in my everyday life.

Six years of working hard with one psychologist for whom I highly regard and have great esteem; we slowly worked on ways for me to do self care and acceptance. Dr. Whitney Koch Owens proved to me that I could trust doctors, there had to be hope, because if a doctor such as herself helped me to trust myself, another doctor, and the people I was shutting out who wanted to help me, then I should keep fighting to find a solution. It has done extreme damage neurologically.

I am now 31. It took doctors for the better part of my life to finally link together that I have Lyme Disease. It happened per chance, a doctor that at the time was not my doctor but in the same practice. Her associate was treating me for SIBO, because the gut issues were creating most of the pain, she decided to start there. Thousands of dollars later, because my insurance doesn't cover anything, and labs. The doctors associate who owns the practice took the time to read every lab that had been taken, and like a puzzle explained to my mother and I, why and how I had lyme disease. I was called out of the blue and told I needed to come into the office to meet a new doctor with serious answers, so of course I took my mom. I will not name this doctor, too many doctors are shamed for learning the truth and trying to help the people that suffer from this disease.

ARTICLE BLURB

Dr. Dietrich Klinghardt Develops More Accurate Lyme Disease Test

diagnose lyme

Lyme disease and other co-infections have historically been difficult to diagnose. That’s why the breakthrough testing process developed by Dr. Dietrich Klinghardt, founder of the Sophia Health Institute, to diagnose lyme is such a significant discovery.Tests such as the Western Blot look for an immune response in patients via their blood samples. Something that often doesn’t occur if someone has had Lyme for a significant amount of time as the organisms tend to hide in tissues vs. the blood stream.

“They’re in the fascia of the membranes — the sleeves around the muscles,” said Dr. Klinghardt in a Facebook LIVE video on September 9. “The internal environment of the blood vessels and so forth. In order to diagnose them, we would have to take tissue samples from that.”

Instead of taking tissue samples, Dr. Klinghardt has come up with a much simpler solution to draw the organisms out.

“(It) involves one hour of very, very deep body tissue body work where the tissues are squeezed and pushed and pulled to the edge of pain of the patient and then we collect the very first urine afterwards,” he said.

At the time of the video interview, Dr. Klinghardt and the Sophia Health Institute had conducted approximately 120 of these tests.

http://www.chronicwellnesssummits.com/klinghardt-develops-…/

I was wondering if I should seek treatment from them I am at a loss I have no means financially to get the treatment that I have been told I need in order to get well. Every doctor visit  since my diagnosis I hear the same thing that I am a very very sick young lady and that the treatment plan I am able to afford is not helping me and that I am getting worse. I do not want to lose hope but it seems as if I reached the light at the end of tunnel and I need to just accept my diagnosis for what it is. My health insurance has already denied me assistance for anything Lyme related and I have spent my entire savings and completly reliant on my parents not just for financial help, bathing, cooking, driving I can take myself to the bathroom and that is about it. I am trapped in a failing body at times it is bearable but when I become lucid I have severe panic attacks until the fog returns.

If I am not able to get financial help is there any place that you could recommend I seek treatment or could possibly help me start to get better?

Thank you for your consideration and help aiding individuals suffering with Lyme Disease

Lindsey Roark

Organizer

Lindsey Roark
Organizer
Henderson, NV
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