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My brain tumour journey
0% complete
£10,489 raised of
207 donations
Hi everyone my name is Paul and this is my story,
The last 6 years have been one hell of a rollercoaster journey, myself and my family and friends never thought it would lead to where I am today, but here we are ….
I’ll start from the beginning, rewind back to 2012, the year my Glioblastoma (brain cancer) was found. Now at the beginning it was benign and scans ect kept a close eye on things so life just carried on.
Fast forward to 2020 my tumour started to grow and after having a biopsy this confirmed my tumour had became cancerous.
I started my Radiotherapy journey in 2021 and went on to a drug called temozolomide ( a type of chemotherapy), this continued until 2022 when my tumour became a very clear grade 4 glioblastoma and again had to undergo further surgery to remove as much of the tumour as they could.
At this point I was put back on the drug temozolomide once I had recovered from the intense brain surgery.
With the brain surgery and treatments this effected my life in many different ways from mobility issues, balance, hearing ect but I told myself I wasn’t going to let this beat me, I continued to work when I could and put everything into life that I could.
And now we are here 2026, Unfortunately early this year we was told that the tumour was growing again and it was now on my brain stem.
I was offered to do a second round of radiotherapy which I grabbed with both hands this finished in July 2026 but this time it hit me really hard. I was completely bed bound, I was sick if I dared to move, this changed my life dramatically far more than the past and far more than I ever expected!
During this period I ended up in A&E after with stroke like symptoms and haven't been able to use my right hand since and my right leg doesn't work properly anymore, again completely changing my life.
Now Here is the part where I need the help, we have been to see a new surgeon and a new consultant who both sat on a MDT meeting regarding my situation and results, they reviewed my latest scans and discussed my options.
Unfortunately they said surgery wasn't an option for me and we had to look at different options.
They want to put me onto a different drug now called Bevacizumab this isn’t available on the NHS but is widely used in other countries with good results, so now this comes at a price …..it's £4000 per treatment and they start at 4 treatments.
Which is why I’m now here …. I need your help…. I need to fight this !
I served in the army, I fought for my country and I’ll fight this !
I’m 38 years old and have my whole life ahead of me and believe me I will fight with everything I’ve got!
Thankyou to everyone who can donate and help and I understand That not everyone can do this but a simple share of this post would mean the world to me and my family.
I will continue to update you all on the progress and outcomes.
Much love
Paul
Organizer and beneficiary
Paul Coleman
Beneficiary




