My beautiful Tiger-Lily.

Hi, I am Victoria Sykes, mother of Tiger-Lily, our beautiful girl has a very rare condition called congenital central hypoventilation syndrome, this is a neurological condition that affects the normal function to breath.

In quick terms Tiger-Lily's brain does not tell her body to breath when asleep, therefore she requires a ventilator to breath for her, this is connected to a tracheostomy that has permanently been in since she was 6 weeks old.

But with funds raised we have a chance to change the path of her future.

I am raising money for the charity keep me breathing, these funds will help build a diaphragmatic pacemaker that will trigger the diaphragm to make her lungs work as they would for us all.

So here's the fun part... I will be taking part in an inflatable 'it's a knockout' challenge, there are 10 of us in the team and we want to win the race!

Please help us raise funds to give us the biggest boost to do this.

Thank you

Victoria