Hi, my name is Wendy and I have written and deleted this appeal many times due to feeling awful asking for help, I have always managed financially to obtain the costs of travelling for treatment, however my and my small family’s savings are decimated and I have nothing left to lose before it is too late.

I have amended the appeal due to time restrictions and the extreme nature of Alexander’s recent diagnosis.

Due to the drastic weight and muscle loss, Alexander has to transported by wheelchair, which I &have borrowed from a very kind friend.

Due to the diagnosis, Alexander will initially need to stay in hospital for at least four weeks to stabilise his condition, followed by surgery.

My son was born with a severe and very complex physical condition, which has associated anomalies combined.

My ex husband, my children’s father could not cope with having a very Ill child, and as a consequence has never supported me physically or financially.

Due to his tenacity and extreme bravery, Alexander has exceeded all expectations of length of life.

Heartbreakingly, over the past four years, more organs are becoming affected, leading to thrombosis of the spleen, pancreatic cyst, ulcers of the gastric system, ulcerative colitis, kidney disorders and epilepsy, to name a small number.

Alexander is a patient of two London hospitals, as well as locally, which we have to visit several times monthly, the costs of travel, staying in London in between treatments is unbelievably expensive. We haven’t had a holiday for many years in order to finance the journeys.

Due to the effects of covid, the waiting lists for treatment are horrendous and unfortunately the treatment at the moment is to stabilise my son prior to surgery and treatment.

I have many health conditions also, which unfortunately are getting worse, and my only wish is to see my beautiful son be able to live a life he so deserves, and be as healthy as possible for as long as possible.

This appeal is from my heart, I have contacted several specialists who are experts in each of the specific and rare disorders suffered by my son, the only clause being they work in the private sector, the initial consultation and subsequent treatment is so very expensive.

Due to all the conditions we can’t obtain medical insurance, meaning self funding.

Again, this appeal is against my ideals to support my son, however I have been advised on several occasions to put our appeal publicly.

I honestly believe that I may lose my beautiful, fiercely intelligent, loving son and I am desperate to access the help as fast as possible.

Thank you so so much for taking the time to read my appeal, I can not express how very desperate I feel.