In 2025 I will be running the Manchester Marathon, to raise funds for the National Tremor Foundation, in particular to raise funds and awareness for Orthostatic Tremor, for my Auntie Lisa. Please read below a note from my Auntie surrounding her tremor:

Orthostatic Tremor

Hi everyone it’s about time I opened up to my condition of 7-8 yrs and my daily challenges suffering with Orthostatic Tremor a rare neurological disease which is overly unrecognised and under diagnosed and is progressive. Unlike Parkinson’s disease it mainly affects your lower limbs but can affect your whole body!!!

I would like you to read this with an open heart and understanding and maybe take part in my challenge? Read and donate as much or as little as you can?

Just to give you a background of orthostatic tremor it only allows me around 2-3 mins to stand without support!! This can mean a friend, family member or a work surface or grab rails, a walking stick to a wheelchair to mobilise around. So I’m just going to put it in a nutshell that I would like you to live like this for one-2hours of a busy day? This would mean when you are cooking, cleaning, shopping or going out to maybe a restaurant or sports event or even just stopping for a chat when walking? Please take on this

experience and please take it seriously that you have 2 mins to stand up before you would have to sit on the floor etc.

Please don’t do it when you are binging TV but truly going through the motions of normal life!! My neice Ella Jarvis has set up a go fund me page

Do you want to join me in making a difference? I'm raising money in aid of National Tremor Foundation and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.

More information about National Tremor Foundation: The National Tremor Foundation (or NTF as we are known) is an organisation where we aim to provide help, support and advice to all those living with all forms of tremor irrespective of age.