​Hi everyone,

​This May, I’m taking on a personal challenge to cycle 100 miles to raise vital funds for Nerve Tumors UK.

​

For me, this isn’t just a fitness goal—it’s personal. I was diagnosed with Neurofibromatosis Type 1 (NF1) when I was just 7 years old. For the last 13 years, my life has involved a constant cycle of MRI scans, PET scans, and consultations with numerous specialists to monitor the condition.

​Living with NF1 requires resilience and constant vigilance. After everything I’ve been through over the last decade, I want to give back. I’m riding these 100 miles to support the incredible research and support networks that help people like me navigate the complexities of this condition.

​What is NF1?

​Neurofibromatosis Type 1 (NF1) is a genetic condition that causes tumors to grow along the nerves. While these tumors are usually non-cancerous (benign), they can grow anywhere in the body and cause a variety of health issues, including:

​Physical challenges: Such as bone deformities or curvature of the spine (scoliosis).

​Neurological issues: Including learning difficulties or vision problems.

​Tumor growth: Which often requires frequent monitoring through high-tech imaging like MRIs and PET scans.

​Currently, there is no cure for NF, which is why research is so critical.

​Why I’m Raising Money

​I’m raising money for Nerve Tumors UK(The Neurofibromatosis association), an organization dedicated to providing support for those affected by NF and funding the research needed to improve treatments.

​Every mile I cycle represents the journey those of us with NF1 take every day. Whether you can donate £5 or £50, every penny goes directly toward making life better for the NF community.

​If you can’t donate, a simple share of this page would mean the world to me.

​Thank you for your support, your kindness, and for helping me hit the road for a cause that matters.

​Let’s make every mile count!

https://nervetumours.org.uk/