ALS (Amyotrophic lateral sclerosis) is a relentless neurodegenerative disease that continuously tries to kill Sean's motor neurons. Simply put, it’s your motor neurons that allow your brain to tell your muscles to move and apply force. As the disease progresses, Sean's ability to initiate and control his muscle movements will decrease, leading to complete paralysis. However, what’s not lost is Sean’s ability to get real about what it’s like to live with ALS.
He’ll tell you it's hard - that it's mentally painful. He'll describe it with words like "prison" and "helpless." But he will only use those words to describe the physical characteristics of his plight. When describing the spirit in his heart, however; he’ll use words like "joyful," "gracious," and "thankful." Most importantly, he’ll tell you that he'd be dead by now, if it wasn’t for the love, kindness, and generosity shown him by his family and all those who have invested in his life.
In addition to your love and support, there are other tangible things that can help sustain Sean's health and improve his quality of life. These things can become quite expensive. Many people ask, “What can I do to help?” You can donate directly to Sean & Alecia. By doing so, you will help them afford some of the following:
~ Medical treatments not covered by insurance, such as medical massages, home health care, physical therapy, occupational therapy, etc.;
~ Home upgrades that promote Sean’s safety, comfort, and independence, such as bathroom renovation, home automation, hardware designed for ease-of-use, future wheelchair access;
~ Assistive technology that helps Sean connect with the world around him;
~ Medical bills.
Sean does not fit the mold of the typical ALS patient, as 80% of people diagnosed with ALS become fatal after 3 years. Although there is no cure for the disease, there are many ways that we can Help Sean Beat ALS.
“You learn how much you love to live when you’re faced with such loss.” –Sean Pritchett
Will you Help Sean Beat ALS?
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