Cures for Rare Diseases

Starting on February 29th, given the rarity of this date, it is also known as "Rare Disease Day", I will be one of the participants this year in a series of physical challenges to raise money for SPSRF (Stiff Person Syndrome Research Foundation). At Northwestern, we are some of the luckier ones with access to great healthcare but that being said, given the rarity of SPS, it often takes 7 years for an initial diagnosis. This is due to the lack of research surrounding what causes it, how it can be managed, and a lack of awareness regarding any cures. I will be doing a series of physical challenges every day throughout the month of March to raise money to benefit The Stiff Person Syndrome Research Foundation, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.

More information about The Stiff Person Syndrome Research Foundation: Our mission is to raise awareness of Stiff Person Syndrome (SPS), to support research for better treatments and a cure for SPS, while strengthening our community through education and collaboration.