MND is a rare, rapidly progressive illness that affects 2 in 100,000 people in the UK every year. It damages the nervous system leading to weakness, muscle wasting, severe disability and death. The victim is unable to move, speak, swallow and eventually unable to breath. Death usually occurs within 2-5 years after diagnosis, but half of those affected die within 14 months. MND is a terrifying illness for the victims and their families. There is no effective treatment or cure.
Jason has a wife, Liz and two little girls, Lilly, aged 3 and Poppy, aged 2. He won't live to see his children grow up and it is unlikely that they will remember him.
The Making Memories Fund has been created to raise money for Jason and his family to allow them to do the things that a normal family would normally do in a lifetime in the time he has left.
Any funds raised will go towards family holidays, day trips and other family activities. They may also be used towards aids and adaptations, such as adapted cutlery (to allow Jason to feed himself for as long as he can) that are not funded by the NHS.
Jason has recently had to give up work, due to his disability. Liz currently works part time, but she will soon have to give up work to care for husband.
A huge thank you to everyone who has donated so far. We had a great time at Centre Parcs, made lots of happy memories and met some lovely people.
We hope to get out and about more as the weather improves. Our main aim is to raise enough money for a family holiday to Disney World. Jason and his sister went with their mum and dad before he died and they have lots of happy memories. Jason would love to take Lilly and Poppy while he is still able.
Beeford Children's Centre have kindly loaned us a video camera and we intend to record as much footage as possible to help Lilly and Poppy remember the good times with their daddy.
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