We are Ben and Nikki Westrope. We live in St. Augustine, FL with our son and 2 daughters. Our son, Kaleb, is our life. He is our hero. He never gives up, never complains ( even when the kids at school make fun of him for walking differently). Kaleb was diagnosed with Limb Girdle MD type 2C (LGMD2C) approximately 2 years ago. After his last visit, Kaleb was also diagnosed with pre osteoporosis because of LGMD2C. He has identical twins sisters (8yrs young) who help him out so much. He can't play baseball, run, or ride a bike.  He has a difficult time getting in and out of the car and walking isn't what it should be at the age of 10. Doctors believe has about about 2 more years before he is in a wheel chair based on the evaluations conducted by his doctors this past winter. We travel to Nemours Chilrens Hospital frequently where we see as many as 8 different Doctors. He meets with his primary MD doctor, a physical therapist, nutritionist, counselor, cardiologist, respiratory therapist, orthopaedic Dr, and neurologist ( as a baby he had craniosynostosis, he had surgery to correct this). He loves playing in the pool and that is probably the only place he truly feels himself. It is great therapy both physically and mentally for him. His happiness means the world to us. He truly is the most positive and remarkable little boy we've ever been around and we are truly blessed to be a part of his life. He makes us better everyday. we wake up and go to work for him. We lift and run now for him, not for ourselves. Because someday he will need his Mom and Dad to help him do things. We ( Mom and Dad) have been together since the 3rd grade and have worked for everything we have in this world. The doctors visits and bills can be difficult to keep up with when you have a child with Muscular Dystrophy. We are now faced with more traveling to get help for Kaleb outside the state in which we live. We will use the funds as needed for Kaleb's medical expenses, travels to other states to seek treatment, medical devices required or recommended by his doctors, and any other devices that the Muscular Dystrophy community recommends that would assist for the better well being for kids facing this disease. Thank you all and God bless.