Hello to everyone who takes the time to read this and to all who wish to donate we are also raising awareness of MRKH.
My beautiful daughter Kensa has been in pain for years! After 7 years of nagging the doctors and far too many visits to the hospital that I can count. We finally received our answers.
At the age of 17 Kensa got an MRI that confirmed her diagnosis. We were referred to UCLH in London to see a specialist where we got the awful news that Kensa, can not carry children.
This has been utterly destroying to a young girl who is just starting her life and feels like her future is gone.
Kensa was diagnosed with MRKH syndrome, or Mayer-Rokitansky-Küster-Hauser syndrome, (we had never heard of this before) it is a rare congenital condition where she was born without a uterus, and the upper part of the vagina is also missing While individuals with MRKH have typically developing breasts and pubic hair, they do not have menstrual periods, and she cannot get pregnant or carry a baby because she lacks a uterus. Her spine and hips are also affected.
We are trying to fundraise to give Kensa a future. She will undergo hopefully a womb transplant when she is ready to have children in the future, but she needs help and support with IVF. There is no support currently on the NHS.
Kensa will also have to go through many surgeries before this can happen.
She is a warrior and we will continue to help her along this very long journey.
we thank you for taking the time to read this, to share, to raise awareness, and to help my daughters future and all those affected with MRKH.
Thank you all so much x x

