Please Help Tiffany w/ MoyaMoya Treatment

Hello,  Thank you for taking the time to read my story; my name is Tiffany, I’m 34 years old; married to a wonderful husband,  who takes wonderful care of me. I have two children, a boy, Leo, 15 yrs old and a girl, Kayla, 14 yrs old and two furbabies, Zoe, 4 yrs old and Alpha, 7 months. I love spending time with my family and traveling/exploring. I moved from Florida to Colorado a little over a year ago. I am studying Anthropology and a bit of Geology while working as a Quality Assurance Analyst. We love going to the mountains to see the wildlife, rivers/lakes and take pictures.  Then, one day I woke up with the worst migraine ever! Not only was it the worst it lasted for over three weeks; after week two I went to the hospital they said it was just a migraine and sent me home a few hours later (no testing was done). Two days later I fainted and could not handle the numbness and vision disturbance from this migraine; this time they did a lot of blood work and ekg; all test came back normal and they sent me home. I fainted a couple more times so I could not go to work without worrying I was going to pass out. When I did go to work they sent me home because I was so pale and squinting from the lights. I had to stay home since the hospital was saying I was fine but I would faint with no warning. On the Following Monday morning I was trying to man up and go to work. I had really bad nausea and migraine. But that morning traffic was crazy and I did not feel well enough to fight against it; the traffic forced me to go the opposite way off my exit, I ended up at Aurora Medical Center. The ER doctor, Dr. Sprinkles (yes, that is her real name) ordered a CT scan with contrast. Once the results were in she came in and informed me that I had an occlusion in my brain and that she was admitting me so that I could see the Neurologist that would be in later that day.  They took me for an MRI as well that evening. I was admitted and finally spoke to a doctor who explained the best he could what was going on. I was informed that I have a very rare disease called MoyaMoya. No one really had/has that much information on this thing they called Moyamoya since as they repeatedly stated that is was rare. The doctor told me to Google it since they had no information in the hospital database to give me. MoyaMoya means "puff and smoke" in Japanese; it is a Japanese word since Moyamoya was discovered in Japan. Moyamoya was described to me as a narrowing of the arteries in the brain and a cluster of small collateral (temporary ) arteries/veins. My imaging report states it is located in the Left M1 MCA ; which provides blood flow to the frontal lobe, eyes, throat, legs, arms. They say that I can suffer from a stroke or aneurysm at any moment and the collateral veins/arteries could collapse whenever they decide to.  I have been told that I can no longer travel like we would every weekend and/or chance we would get. I can not go to the gym or do anything extraneous. There is no cure and not enough research on Moyamoya. At this time the only real treatment is surgery but it is really expensive and insurance does not cover it. I also have so many neurologist and neurosurgeon appointments and testing that I have to pay for and miss work for. They say after surgery I will be able to live a normal life! I will be able to live again; travel, go to the gym, take the dogs and children to the park, fishing, exploring.I will be able to  go out in public and to work without the fear of collapsing and dying on the spot. I appreciate any help that any one can give even if its just sending positive energy my way!!! :) :) :) Thank you for reading my story and I hope you have an amazing life full of love and happiness. :)