Moving mountains for Talon

My sister Ashley took my sweet nephew Talon for a routine physical with his pediatrician on May 31, 2018.  Little did they know the news they were about to find out would turn their lives upside down. They noticed a very large lump in his lower to mid abdomen. He went straight for a X-ray that day. They were still undecided on what exactly it was but knew it was a tumor of some sort so he had a sono the next day followed by a CT scan. Both came back not so great and he got in to see a Pediatric Surgeon, Dr.Molik,  just the next week. Again she didn’t like the scans and she scheduled for surgery the very next day which was June 6th to remove the tumor which was an incredibly large tumor removed from near his spine and came around into his abdomen. He stayed in Wesley Children’s hospital from Wednesday until Sunday evening. It sure was tough seeing him there in so much pain, but his momma stayed by his side. He has had some very rough days but has been making great progress each day! The pathology from Wesley came back undetermined and they sent it to St.Jude which they just got that back this week and again still aren’t giving him a final diagnosis but they are leaning towards consideration of a low-grade spindle cell (fibroblastic) cell sarcoma. They've sent a tissue sample to Genomic Medical Profiling and DNA to hopefully get a final diagnosis so they'll  know exactly how to treat and how invasive. He is having a repeat MRI on July 9th and a CT of his Chest to make sure nothing has spread to the lungs. *(Lots of Prayers Needed) He will follow up with the Ongologist Dr.Thapa on July 16th to review the results. The Doctor said the DNA testing will cost about $5,000 & won't be covered by insurance.  Ashley may need to take Talon to Tennesee to St. Jude as well. Ashley has herself and her 5 boys to stay strong and support. I set this up because I know she could use the help and support. She has been missing work without pay to take him to appts and the time she stayed with him in the hospital. I know she's trying to stay strong for all her boys but I know she's completely breaking down inside. Please share this story. Even the smallest amounts add up and can help out tremendously. Thank you! 31019636_1530551243685647_r.jpeg

Donations

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  • Anonymous 
    • $100 
    • 24 mos
  • Emily Metcalf 
    • $50 
    • 27 mos
  • Amy Wallace  
    • $50 
    • 27 mos
  • Anonymous 
    • $100 
    • 28 mos
  • Ashley Houser 
    • $30 
    • 28 mos
See all

Organizer and beneficiary

Andrea Chavez 
Organizer
Wichita, KS
Ashley Luckey 
Beneficiary
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