- S
Hi, my daughters name is Olivia. we have had a rough year. At 11 months old mom found me lethargic/not moving in my crib. Parents rushed me to a children’s hospital 2 hours from home. I had a lot of scares. ultimately, i was diagnosed with SJIA. i got better and had to try some many different medicines! my IL-18 is still extremely high. Olivia recently went in for a CT scan and learned shes is developing ILD. (Interstitial lung disease) I am now going to be evaluated for a Stem cell transplant. We appreciate all the help we receive as we try to navigate our way through this hard time.

