Morgan’s Leg Lengthening Surgeries

In  September 2015, at my 16 week prenatal ultrasound we found out our future son's right femur was half the size of his left.  We learned that our son would be born with a rare birth defect called Congenital Femoral Deficiency.  This birth defect occurs in about 1 in 40,000 births. Our son Morgan arrived 5 months later, with the most incredible loving spirit.  Since Morgan was a year and half, he has been fitted with prosthetic extensions to help him stand, walk, and run.  Now that Morgan is 3 years old, it's time to make difficult decisions. Because as Morgan ages, the discrepancy in length of his right and left leg will continue to increase. Since CFD is very rare and its treatment relatively new. Few surgeons are experienced and trained to treat CFD. For this reason, we traveled to the Paley Institute in Florida.  This Institute is the most experienced center in the United States and the World and has a very high success rate. We want Morgan to receive the best care from the most experienced medical team.  Dr. Paley's knowledge of limb deformities is incredible.  At our consultation, Dr. Paley gave us hope and confidence that he will be able to fix Morgan's deformity and avoid amputation. Because of Morgan's determination and wish for independence, we have decided to save Morgan’s leg and give him the best opportunity at living his best life with both feet on the ground. To accomplish this wish, we will be going through a challenging ten year journey of multiple surgeries.  Morgan's journey will begin in March 2020 with his first major hip, knee, and ankle reconstruction surgery. Then, will continue his journey with multiple leg lengthening surgeries.  These surgeries will require us to remain in Florida for months at a time to ensure Morgan receives vigilant follow up and aggressive rehabilitation for a successful outcome.  Unfortunately, this comes at a great expense. 

This is where we need your support.

We are lucky that some of the hospital/rehab costs are covered by our insurance companies, but our family will be incurring many extra expenses, such as out of pocket/uncovered medical bills, travel to/from Florida, housing and transportation while in Florida. 

We have an amazing network of family and friends who have been supporting us during Morgan’s journey towards both feet on the ground.  We appreciate the prayers, positive thoughts, and your acts of love and kindness.  Words cannot describe how grateful we are.

Donations

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  • Jack Bono 
    • 150 $ (Offline)
    • 1 mo
  • Gehrig Sullivan 
    • 20 $ (Offline)
    • 1 mo
  • Anonymous 
    • 25 $ (Offline)
    • 4 mos
  • Louis & Maria Castagnola 
    • 200 $ (Offline)
    • 4 mos
  • Nancy And Mitch 
    • 2,000 $ (Offline)
    • 5 mos
See all

Organizer

Sarah Shrout 
Organizer
Ramona, CA
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