This is Dustin. He is 27 years old, and has the rare Phelan-McDermid Syndrome (a deletion on the long arm of the 22nd chromosome), autism, and other serious medical issues.
He started getting really sick at the end of February 2020, but hospitals didn’t want to touch him due to COVID. He finally ended up being admitted. He had ostomy surgery and other procedures done. Now his digestive system won’t restart and he is suffering. Heartbreakingly, his mom, Angelique, signed his DNR yesterday and he will stop TPN and come home today for the last time. He was given maybe 2 weeks by the doctors. It’s time for him to be with his family. He will have home hospice
I am creating this fundraiser for Angelique and her two children (Reanna and Caleb) so that they can give Dustin the funeral and burial he deserves. Angelique is on disability, and no life insurance company would cover Dustin due to his severe disabilities. All money raised will go directly to them.
Thank you so much for your kindness and generosity. Dustin is Angelique’s light, and he is a blessing. No one should have towatch their child die, and no one should have to figure out what they are going to do once he does.
- Mandi Messina
- Debra Huyghebaert
Organizer and beneficiary
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