My mother, the woman who is the champion of my life, the rock and supporter of my world, and the very woman I aspired to be, was having to face one of the most unforgiving diseases out there. This isn’t fair, I thought...how could such an amazing, God-fearing woman have to endure such pain and suffering. And like the selfless woman my mother is, she told me on the phone that day, “But I talked to the doctor after he told me, and I asked him if this disease is genetic...he said no, thank God you’re not likely to get it!” Even as my mom’s world was crashing around her, her first thought was—can my children get this disease from me? How blessed am I to have a mother like her. As the months have gone by I have seen my mothers condition worsen—the most noticeable difference was her inability to walk without support, this has declined rapidly since she was diagnosed, and I will say it has been the hardest thing for me to witness. Although my mom’s condition has worsened, her attitude remains positive and her spirits high as usual, continuously trusting God to bring her strength and healing, and that His Will be done in her life.
Fast-forward to today. My family and I have continuously prayed for my mom’s healing and guidance through these difficult times. A ray of hope presented itself when I learned about an ALS study through a friend, and as of now my mom is going through the process to become apart of this opportunity. The study has previously been conducted in Israel, and results showed a stop to the motor degeneration process, and in some cases, the symptoms of ALS had been reversed (definitely message me if you want to know more about the study). Now in the US, the study is being held in several locations, but the closest place to where we live is in Massachusetts (a 9 hour car ride both ways). If/When my mom gets into the study, she and my dad will need to make that 9 hour car ride to MA 11 times to complete the study in its entirety. Although the study itself is free, this does not include the cost of hotel stays, food, and gas.
My dad is an amazing man, never have I seen such a hardworking, dedicated father/husband sacrifice himself the way he does. He has completely ALS-proofed our home, and although there are a few tight squeezes throughout the house, I am so extremely happy to say that my mom was able to keep her newly redone bedroom upstairs :) we currently have an elevator installed, many ramps, hand rails and a chair lift. My dad is constantly accommodating, fixing things up, keeping us all afloat...and does not seek a thank you or “good job” in return. He goes out to his shop, works on a project for our family, brings it in and makes our lives so much easier on a day-to-day basis. We often forget to really appreciate the caretakers that selflessly work to make life easier for their loved ones that did not choose to fight the battle they’re in. I want to say thank you dad. Thank you for your love and compassion, for your patience with all of us. You have put us on your back and have never let us fall. You are my rock and my role model.
I appreciate you all letting me tell my mother’s story. She is a loving and caring woman, and I would literally do anything for her. I just wanted to reach out and ask for you to keep my mom and our family in your thoughts and prayers, and if you feel called to help out financially, we would be eternally grateful for your generosity. Money received through this GoFundMe page will go towards my mom’s medical bills, the study, and future medical aid she may need to receive in the challenging years to come. You all have been such an amazing source of support and love for me and my family, thank you for all you do. Every meal, visit, phone call, prayer, thought, donation, time spent, equipment moved/removed, and everything in between is appreciated so much, I honestly don’t know how I can repay you all. God bless.
"For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future."
- Pauline Brann
- Anne Copeland
- Alex + Coty Hughes
- deric tyler
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