Mom's Brain Cancer Bucket List

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Mom's Brain Cancer Bucket List

Hi, my name is Jamie. My beautiful mother Linda has terminal brain cancer, leptomeningeal carcinomatosis.

We learnedast Thursday that her palliative chemo (not curing, but keeping the cancer stable) has officially stopped working. One of her 4 main tumors grew, in just under a month.

My mom has always been one of those people that has been so supportive of me and helped me to try an achieve my dreams. I'm wanting to do the same for her.

My mom was diagnosed in 2019 just days before her birthday, in July, with stage 3 lung cancer (adenocarcinomatosis). She received chemo and radiation and in early 2020 we were told she was in remission.

After that hear she mentioned to me she couldn't see well out of her right eye. So we took her in and they believed she had an eyes stroke. She started to have worsening vision, was unable to drive, and was increasingly forgetful. We took her to her cancer Dr. where we quickly learned that she in fact had a brain tumor in her brainstem. It was cancer.

She had radiation and chemo and it shrunk some... then a new one popped up. She had radiation and that shrunk a bit... this happened repeatedly for months. We would find a new tumor, treat it, and another would pop up.

On January 11th of this yr we sat in a cold roo. At her cancer doctors office. He came in and let us know her latest MRI did not look good. She now had cancer of the brain lining too, leptomeningeal carcinomatosis.

They started her on Chemo and radiation immediately. But they told us that even with the treatment she only had 2 to 4 months. Without treatment, 2 to 6 weeks. She opted to treat it. The treatment kept her cancer stable for 2 months.

Then one night, when she was spending the night at my house, she wasn't acting right. I couldn't keep her awake ALL day. Evening came and she was sleeping sitting up on my couch. I looked over and her lips were blue. I yelled for my hsuband to grab my pulse oximeter to check her oxygen. I checked it and it was 76. I said call 911 NOW. She woke up long enough to say no ambulance. My amazing husband got her to our van and we rushed her to the hospital. When we got there there it was quickly determined that she had pneumonia, sepsis, congestive heart failure and was in septic shock.

The doctors told me this was it. I am her Healthcare power of attorney and they urged me to put her on hospice. She was in critical condition and wasn't herself, completely out of it. I eventually after much thought. Asked the Dr. how long it would take to for a normal person to turn around from this on antibiotics and he said... "I've seen completely healthy people get sepsis and never walk out of this hospital. But if we do antibiotics we would expect to see a change in 24 to 48 hrs if it's helping"... I said "then we will give her that chance."

7 days later she was called a miracle by that same Dr and she walked out of that hospital.

Then last week we were informed that this is it. Chemo Treatment has failed.

We will be doing a ten day round of full brain radiation. There is a high chance that she will lose her memory, become like a child, and not remember anyone. I'm so scared for that.

When she first got sick we had a bucket list we created and we are having fun checking off those items.

Her time is very limited and we still have some things we would love to do. As well as helping her with the piling medical bills that are stressing her out. Insurance has covered very little.

She has cared for my stepdad for years. He has MS and is wheelchair bound. He cannot walk. I too have MS and Crohns and even through her battle, and knowing her beautiful life is coming to an end, she still tries to care for everyone else.

This is breaking me. I just want the best for her in the time that she has left. She is only 60 and this is just breaking my heart for her. She is my entire world and I have no idea how I will ever live without her. The grief comes in waves but most days I'm drowning.

She taught me how to live, judt never how to live without her.

Help me make her time left here, as amazing as possible. She wants to do so many fun little things. And I so want to make sure they happen! And I want to take some medical bill stress off of her too.

We appreciate the love and support.

Organizer

Jamie Dupas
Organizer
Racine, WI
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