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This has been a long journey for Stephen and the entire family. Born with Fibula Hemilelia, a congenital leg deformity effecting 1-80,000 Alot of you have followed us since his first surgery at 6 months. It is now 20 years later, 36+ surgeries, 24 cm longer, just a few more steps to go. Stephen lost alot of his childhood , always in hospital or wheelchair. Stephen and I spent months at a time away from our family and friends. He has endured more pain then any child should All these years, after every surgery we thought it would end. Recently Stephen came to us, realizing that he could no longer stand the pain. He could no longer live a quality of life that kept him 2 steps behind. Amputation was the answer.
The doctors in Ontario were unable to help him, His condition was complex so we were referred to Florida where he see's the best doctor in the World, Dror Paley who will perform what we hope is the surgery that saves his limb. He will have an internal telescopic rod that lengthens his leg with a magnet 1mm a day. right now there is a 4.5cm difference. He will have his foot and ankle broke, realigned then fused. His therapy is intense and most horrible to watch. After healig Stephen will have a custom made brace only made in California.This brace will give him the ability to walk.
We all want the best for kids. We want our little birds to spread their wings and fly. My little bird has a broken wing,. I have laid my head down for 20 years wondering how I can make him better, how can I stop the pain. Only this procedure can do that and then he will be free of pain and his dream to run will come true.
This is a costly surgery taking place in West Palm Beach Florida. Most is self pay, Therapy is $250 for 1hr $15,000.
The brace that will finally give him the abilty to run is $8000.
Travel, accommadations and food..it all adds up to a financial mess and unneeded stress.
Thanks to all who support Stephen's
Journey...we are just steps away fron our final dedtination.
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- Rose & Shawn DesRochers
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