Mitch Shaver's ALS battle!

Today is the day that this GoFundMe page becomes a foundation to spread awareness, memories and hope. On January 30th Mitchell Shavers " my best friend, my bother" was diagnosed with ALS (Amyotrophic Lateral Sclerosis). It is life changing and brings with it many obstacles. We do not know how the future will unfold, but what we do know, is with the love of family and friends it is going to be powerful! Together we will move forward with continued strength and love. We will research and fight to help find a cure for those with ALS. Below is information regarding the disease. Follow daily photos on Instagram at #TeamShaverHoorah.

What is ALS?
More commonly known as Lou Gehrig's Disease, ALS (Amyotrophic Lateral Sclerosis) is a progressive, neuromuscular disease that is characterized by a degeneration of the motor neurons; the cells in the brain and spinal cord which control muscles. As the motor neurons die, the muscles weaken, affecting the ability to move, speak, swallow and breathe. Through it all, the mind remains fully aware. As of today, there is no known cause or cure for ALS, although there are many promising research programs.

The Facts About ALS
It strikes both men and women, generally between the ages of 40 and 75, although many patients are young adults in their 20's and 30's.
In the US there are currently more than 30,000 people living with ALS and over 5,000 people in the US are newly diagnosed with ALS each year.
In Michigan, it is estimated that there are over 1,000 people with ALS (PALS) and 200 who are newly diagnosed on an annual basis.
ALS occurs throughout the world with no racial, ethnic or socioeconomic boundaries.
50% of patients with ALS live 3 to 5 years, 20% live 5 to 10 years, and 10% survive 10 years or more.
Sporadic ALS is the most common form and accounts for 90-95% if all cases of ALS. It occurs randomly throughout the population.
"Familial" ALS suggests the disease is inherited. Only 5% - 10% of all PALS appear to have some form of inherited ALS.
Diagnosis and Treatment of ALS
Early symptoms vary with each individual and ALS is very difficult to diagnose. There is no one test or procedure to establish the diagnosis. However, once a diagnosis is made, much can be done not only to help PALS live with the disease, but also to live more productively and more independently.

Rehabilitation techniques and assistive devices are helping patients learn how to work around the weakness and functional disability caused by ALS. Plus local organizations, ALS of Michigan, can provide PALS with support groups, necessary information and caring ears.

"There is information available today.
There is direction.
There is hope."

The funds raised by this page will go to the Shaver family.  I know that Mitch wants to raise awareness about ALS.  Mitch would be the first to tell you that they do not need help (Money).  For those that know Mitch, you know him to be a proud man. I know in the coming month's/years the battle will be difficult and they will have unforeseen expenses.  Mitch may choose to donate all the funds to ALS, but at the end of the day I do not want him to waste any time worrying about money.  I want him to spend time making memories and enjoying the remaining time in his life. 

Donations

  • Gary/Linda Kraft 
    • $50 
    • 5 mos
  • Tara Johnson 
    • $100 
    • 8 mos
  • Jennifer Yapo Szymanski 
    • $100 
    • 16 mos
  • Laurie Getzen 
    • $90 
    • 21 mos
  • Dylan Resnick 
    • $100 
    • 21 mos
See all

Organizer and beneficiary

Ralph Clauson 
Organizer
White Lake, MI
Mitchell Shaver 
Beneficiary
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