Miranda Cook’s Brain Surgery Tammy Cook's Daughter

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Raised by 21 people in 6 days
New Updates! Please share what you can with Tammy Warner Cook and Miranda Cook! Lets at least take away the financial struggle that they face. Please share! Even gas or gift cards are helpful, Thanks everyone! 

Update on Miranda...

We are blessed to have so many prayer warriors.  You all are amazing!  At our request you have prayed for housing, for travel, for miracles.  While we were specific with our request, God knows better what we need.  So our answer was so very different than we expected.  

Some of you know we reached out to Cleveland Clinic at the same time as Stanford as we were very comfortable with both doctors. They are both leading clinics for moyamoya.  Somehow Cleveland didn’t get all of the referral info and when we discovered it, the primary care sent it again but at that point things were in motion to Stanford.  We don't know why or how but a Cleveland doctor on vacation, reviewed Miranda's tests and asked (with less than 24 hours notice), if we could have a video appointment - again while he was on vacation (we could hear kiddos playing in the background).  Last Friday they said we would not be able to have a virtual appointment with him until July 25.

This doctor agrees with the doc in Stanford, which is very comforting. In fact at national conferences where there is a panel discussion on moyamoya both the Stanford and Cleveland docs sit on it.  The Cleveland doc will do virtual appointments, the Stanford doc (at this point) will not.  The surgeries could be a few days sooner in Cleveland.  We are looking at July 19 and 26.  

We have also been worried about the travel and how that will affect Miranda's healing. Cleveland is 3 1/2 hours away...she can heal at home and it also means if there are any issues in years to come, we can get there quickly and easily.  

There are many, many more considerations but our miracle was an unexpected one - we are heading to Cleveland. Cleveland Clinic is currently ranked as the No. 2 hospital in the country by U.S. News & World Report (2018-2019). 

You have to be an advocate for yourself and your family in healthcare and keep looking to find the best. We feel blessed to have found two very qualified doctors. If you keep asking questions, you’ll end up in the right place for yourself and your child. The right place for us is Cleveland Clinic.

Thank you!  Keep praying - we need it!

As some of you know Miranda has been diagnosed with moyamoya. It is a rare brain disease and was discovered about 6 weeks ago when she had a stroke. She needs bi-lateral bypass surgery to bypass the closing arteries in her brain. Two long surgeries...scary stuff!

We have decided to travel to Stanford, CA for the surgeries. The surgeon there has done more than anyone else in the country and folks from other countries travel to him as well.

Surgeries are scheduled for July 23 and July 30. We don’t have exact travel dates yet as we are waiting to hear if they can use a test Sparrow did or if they have to re-do it. Likely we will be gone July 17/18 to August 7/8. It’s a long time to be away from home and work but Miranda should be able to make the start of her college career in August!

I am throwing this out to my tribe to see if you can help with accommodations. Ideally a 3-bedroom place (we could make a 2 bedroom work) near Stanford or Palo Alto. We are willing to pay but Airbnb and VRVO are all pricey and hotels are outrageous! Miranda will only be in the hospital two days for each surgery so we need a quiet place with no commotion for her to recover and therefore don’t want to stay with anyone....besides there are four of us.

Know of any vacant but furnished homes, condos, corporate apartments? Stanford/Palo Alto area approximately July 17-Aug 8.

Even if you don’t, we’d appreciate you keeping us in your prayers. It’s been a lot to take in since the beginning of June.
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$2,430 of $7,500 goal

Raised by 21 people in 6 days
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