It has been a long and harrowing month as Nell and Ted watched their bright and enthusiastic little girl dramatically disappear before their eyes. From seizures to catatonia, MRI's and spinal punctures, plasmapheresis and IVIG infusions, and finally chemotherapy drugs, Mira has been through it all. Mira has been diagnosed with an extremely rare condition called anti-NMDA receptor encephalitis, a form of autoimmune encephalitis. After enduring multiple ineffective treatments she is the middle of a series of chemotherapy treatments that will hopefully bring her towards recovery. There are still more tests to be done and a significant rehabilitation period to navigate.
As the treatment continues into its second month, Mira's care has necessitated that both Nell and Ted be at the hospital all day and night. They have been unable to work, and Nell had to take an unpaid leave of absence from her new nursing job. They are in great need of financial support to pay for child care for Graham, Emmett, Jasper, and Henry. Due to Nell's unpaid leave of absence they have also had to go on COBRA to continue insurance coverage and will use the funds to pay for the significant out of pocket medical costs which are expected to continue for many months.
We are asking for help on behalf of the Timmer family, as they have been there countless times for their friends and community in our times of need.
Nell and Ted are grateful to their perceptive doctors for picking up on this rare disease, to Mira for being the strong and fierce creature that she is, and to their four resilient boys who have had to make major adjustments in being away from their Mom and Dad while worrying about their sister. They are so grateful to their supportive family, friends and community that have helped them beyond words with love and support.