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Get Minnie to America for Lifesaving Heart Surgery

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Yesterday (Boxing Day), we received the best Christmas present any parent could possibly dream of.. The news that we've been waiting for - our beautiful Minnie has a chance at the lifesaving surgery that she requires to give her the best chance of life.

Our beautiful Minnie Moo has a very rare and severe form of congenital heart disease, Ebstein's anomaly, with all the associated defects. Unfortunately, her case is so severe she is classed as a single ventricle patient and her options are limited. She’s very restricted in life and constantly breathless/ cyanosed (purple) as her oxygen levels sit dangerously low at 75-82%. She has 3x peg feeds per day, various medications and nurse visits weekly to check her level of heart failure.

Minnie is terminally unwell; we are constantly told by specialists here in the UK that she will never be in a state of repair… And we have been constantly told that this surgery would not be possible due to the severity of her anomaly and additional conditions!

After refusing to accept this as her fate, we fought hard to gather the data in seek of a last chance, and final opinion from the foremost specialist in her rare condition, Dr Da Silva! 

Initially he agreed with the top UK cardiologists, who say that Minnie is irreparable, but hope emerges. The very doctor responsible for inventing the intricate 'Cone Procedure' operation that Minnie urgently needs—Dr. Da Silva—has agreed to take on Minnie's case!!! This is huge and news the whole family has been waiting for! It’s a final beacon of hope for our precious girl to give her the best chance of life!!

Being in America this surgery of course requires funding. Minnie’s’s fought SO very hard to get to this point, as have we! We are here asking for your help in supporting beautiful Minnie raise £140,000 to cover the cost of flying to America on a medical flight, surgery and 11 days as an inpatient. (Additional hospital days are charged at an extra £6,000 per day!) 

We thank you from the depths of our hearts, for joining us in the mission to extend our Minnie's precious time. 

We couldn’t be more grateful for any contribution! 

Sharing this post and supporting our GoFundMe campaign is equally as helpful! 

Let us rally behind Minnie, as we explore every possible opportunity to prolong her life! Not having surgery is not an option! 




For more on Minnie’s story, or to follow her journey on social media/ share her story to inspire others:

If you would like to reach out or make contact, please do not hesitate to drop a message


Fundraising team: TEAM MINNIE (3)

Jesse Shaw
Charlotte Tugwell
Team member
Lorraine Sherry
Team member

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