Hi guys! Anyone who knows myself or my daughter, Ireland, knows that she has struggled with sever gastrointestinal medical issues since birth. After years and years of surgeries, testing and drug trials they were finally able to pin point her disorders and ‘give them names’. She was diagnosed with CVS (Cystic Vomiting Syndrome), Anorectal Motility Dysfunction Disorder, IBS-C, and Inflammatory Bowel Disease, Crohns, well coming to the realization that her sphincter & rectal muscles do not contract properly and are almost atrophied . This lead to more drug trials, more treatments that did not work and finally lead to major Gastro surgery on June 5th 2019. She had to have an outside medicinal port put in. This port was placed at her hip bone and ports thru her appendix and into her intestine. Each evening she has to undergo an hr+ medical porting where we flush her body with medication. Her body cannot process certain foods and her lower gastro muscles not working properly leads to food and bile backup. Ireland has been admitted to the hospital more than 100 times in her 9 years, due to excessive backup and bile seepage.
Between her never ending stays in the hospitals, the drives back and forth to her specialist up to 4 hours away, & her monthly medication, the insurance just isn’t covering it...not to mention the $12,000 bill for her recent surgery.
I am unable to work outside of the home and recently started selling baked goods out of my home as well as cleaning house to help cover the expenses. Asking for help is the last thing that I ever want to do, however I have had several friends reach out and ask how they can help, this is our solution. Any help is greatly appreciated ❤️
- Jeanette Gibbs
- Kristin Roberts
- Enrique Drago
- Trudi Lenehan
- Elyes Hasnain