Milo and Family

Milo is a beautiful 11-year-old boy who lives in Kells, Co, Meath. Milo has the most beautiful smile with an infectious laugh that lights up everyone around him.  Milo was born with two rare genetic conditions, Leigh and Mabry Syndrome, needing 24/7 care to support his every need.  Milo is nonverbal and unable to support himself sitting, relying on a wheelchair assisted for mobility. He is also peg feed and recently diagnosed with Epilepsy.

Caring for a child with complex medical needs can be physically, mentally and financially stressful, requiring full-time care by a family member. Milo requires specialised equipment, therapies, medication, and a special diet and supplements that the family must purchase from the USA to improve his quality of life.

The simple things we take for granted in life can often be a challenge to children with additional needs, the branches spreading wide and impact every part of their family’s life. An adapted vehicle, accessible housing suitable for the needs of a person living with a disability are essential, yet often unachievable due to the financial strain felt daily.

Milos family have continued to give Milo the best quality of life, ensuring he is happy, healthy and every need cared, his Mum Alicja had been a powerful advocate.
On March 1st the family unit was broken as they lost Alicja their beloved Mother, Wife to Arek and Milo's Primary Carer. Alicja suffered Metastatic Cancer which after a year of suffering through various treatments none of which could save her, Alicja took her wings.
Arek now must face life without his wife, learn to deal with the loss of this beautiful soul while trying to maintain the day to day needs of Milo and his brother Livio, who is 12 years old.

 Alicja gave Milo every opportunity to live a life of equality and to enjoy his childhood, "Milo is a prisoner in his own body", Alicja would say, our hope and goal is to continue to give Milo the life Alicja so wished for him, supporting the family to allow this to be achieved.
We as a community and friends are coming together to organise fundraising events in hope of providing financial assistance to Arek and family to lessen the burden. The loss of Milo's wonderful Mum, a beautiful lady, friend and a valued member of Kells committee, will forever be felt, and the wish to keep her memory alive in the lives of her children is a testament to the woman she was.
Alicja was selfless in her care for Milo and others. She was dearly loved by all her friends and family, a unique, brave and courageous woman.

All funds raised will go directly to Arek, Milo and Livio’s father and primary carer to assist with Milo's 24-hour care and all his needs.

 They now face a difficult chapter in their life without their shining star Alicja.

Please join us to support Arek and his family.



  • Anonymous
    • €5 
    • 11 mos
  • Anonymous
    • €1,000 
    • 1 yr
  • Simon Monaghan
    • €20 
    • 2 yrs
  • Anonymous
    • €50 
    • 2 yrs
  • Ann O’Riordan
    • €20 
    • 2 yrs

Organizer and beneficiary

Milo and Family Committee
County Meath
Arkodiusz Poblocki

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