Help Millie and her family with legal and medical costs

This fundraiser is being set up to cover legal costs (a solicitor), private ME/CFS specialists and private care after hospital for Millie McAinsh.

Millie (age 18) has very severe ME/CFS and has been in struggling in hospital for nearly 12 weeks to receive the care she needs and to return to the safety of her home environment with a feeding tube which is necessary due to the level of exhaustion and pain she is experiencing with her condition.

Her and her family thought the hospital stay would be a week or less to get a feeding tube and return home to the best environment for the management and treatment of her symptoms which include extreme pain and sensitivity to sensory stimulation (light, sound, touch, pain, movement), fatigue and post exertional malaise (PEM) following any exertion.

●The situation with Millie has got to the point where there is a total breakdown of trust between the hospital and Millie/family. Because of this they have made the decision to involve a solicitor to try and get matters resolved.

●Once Millie is out of hospital family wish to engage with the best Dr's and other healthcare providers available to help manage Millie’s MECFS symptoms and also to move along the road to a full recovery as far as possible; all this will be costly as most of these providers are private.

●Top ME/CFS specialists in the UK state that "Some patients with very severe ME will require tube feeding, either enterally or parenterally."  (see https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8070213/).

Millie is one of these unfortunate patients and family wish to use a private care company to help with NG tube feeding at home due to a lack of NHS services in Millie’s postcode area for this and alongside support from the hospital and NHS community nurses; this will incur costs of travel and care.

Funds are going to Lucy Montgomery (Millie's Mum), to manage on behalf of Millie.