As many of you may or may not know, Miles Danger Ferree, was born on March 25, 2016 in York, PA. He was born with meconium ileus, a blockage in his small intestine that required him to be rushed to Hershey Medical Center and undergo an emergency surgery less than 12 hours after he was born. While in the NICU, Miles was found to have a pancreatic enzyme deficiency that further complicated his digestion. Ultimately the underlying cause of his issues was confirmed to be Cystic Fibrosis.
Cystic Fibrosis (CF) is a genetic disease which causes an unusually thick and sticky mucus to build up in the lungs, pancreas, and other organs. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients. In the lungs, the mucus clogs the airways and traps bacteria leading to extensive lung damage and life-threatening lung infections.
Miles has been in the NICU at Hershey Medical Center since birth and has gained a reputation with the nurses. Because of the nature of his illness, he presents as a healthy baby and has been one of the nurses’ favorite cuddlers! Now that he is over a month old, he is more alert and spends his days observing his surroundings. While Hershey has done everything they can to make him comfortable, the Ferrees are really looking forward to getting Miles home so he can observe a much bigger world. He is scheduled to have his reanastomosis surgery on May 12th. The typical recovery time is a few days but due to his condition, he may spend a few weeks in the NICU after surgery to ensure he is able to gain weight on his own before heading home.
Since Miles has a higher risk of infection from germs and other bacteria, the Ferrees are doing all they can in order to prepare their home for his arrival. One of their biggest projects is installing wood floors on the entire first floor of their home in place of the carpet they currently have. Due to the length of Miles' time in the NICU, Amanda is also considering a longer maternity leave than their family had originally budgeted for.
Amanda, Matt, and their oldest son Axel are all anxiously waiting to bring Miles home! Please consider donating in order to ease the extra financial responsibility that comes with this diagnosis. If you would prefer to donate privately, please contact myself (Tracey Martin) or my sister (Amanda Ferree) so that can be arranged.
Regardless of whether or not you are able to support financially, please keep Miles and the entire Ferree family in your thoughts and prayers. Miles is very blessed to have such a supportive and loving family surrounding him and all of your kind words, love and support is very much appreciated!
To find out more about Cystic Fibrosis, please check out the Cystic Fibrosis Foundation website at https://www.cff.org.
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- Christ Lutheran Church of Spry Adult Sunday School Class
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