Hello,

We are the parents, Hunter and Tyla Kirch, to our precious son, Miles Kirch.

Miles was diagnosed with a very rare genetic condition called, MEF2C Haploinsufficiency Syndrome, that's affecting around 400 people worldwide.

While many typical 3 year olds should be giving their parents a run for their money. We are only hoping for that to be us someday.

Miles currently can not yet, walk, talk, feed himself, or even sit up without support.

We are still holding onto hope that he will reach any of those milestones. As only time will tell.

Miles is currently going on 11 months, SEIZURE FREE! We couldn't be more proud of our son showing us what a true fighter is. While he still has many obstacles to overcome, we hope that this year will help push him to reaching close to his full potential.

Currently we are doing anything and everything we can in helping him improve. He is in speech, occupational therapy, and physical therapy.

Due to our beautiful, but yet rural area, we have limited resources to full intensive facilities that can help improve our son's abilities. This has required us to look out of state for what can be given to help our son.

We have recently been accepted into a 3-week intensive program in September in Austin, Texas. This intensive will consist of DMI (Dynamic Movement Intervention) which is a therapeutic technique that treats children with motor delay. He will greatly benefit from this, especially if he continues to stay seizure free.

This will help unburden us from any financial strain. All funds will go towards travel and flight fees, gas, food, medical costs and all other expenses that will give our son the best and utmost experience.

Thank you,

The Kirch Family