Miles for Mainey

As Leah’s friends and family, we feel completely useless and just want to do something!

We want to raise funds for Leah, Tramaine and his siblings to make as many memories as they can!

Leah has already started making a list of his favourite things!

Fast cars

Ice cream vans

Helicopters!

We decided to walk!

We are walking from Nottingham to Skegness on Saturday 29th July, dressed as superhero’s!

Tramaine’s story;

Tramaine (Mainey) has a rare, aggressive childhood cancer called neuroblastoma.

Mainey has been through more than anyone should ever have to and he’s 4!

In February 2021 Mainey started complaining of stomach ache, he wouldn’t eat anything and was being sick. His parents took him to the doctors several times but were told he was constipated and given medication, when that didn’t work they were told he was lactose intolerant and to cut all diary out. When he didn’t get any better they took him to A&E and were told he had a virus. This went on for 4 months!

They were back and forth constantly as Mainey just got poorlier. They begged for his blood to be tested but this was refused as it was ‘too invasive and not required’. They felt like they were loosing their minds!

Mainey’s dad decided to take him to A&E and refused to leave with him until his bloods were tested. They finally started to get some answers, but they were answers they weren’t prepared for. They were told Tramaine had cancer.

They were transferred from A&E straight to the oncology ward at the Queen’s medical Centre Nottingham for more tests, it was first thought that Mainey had leukaemia but within a few days they were told he had stage 4 high risk neuroblastoma.

Within a week of being in hospital, Tramaine’s eyelids had turned black and swollen shut. Little did they know at this point that Mainey’s cancer was so advanced that it had spread to every bone in his skull and face,his bone marrow was full of cancer.

It started with a tumour attached to his kidney but had very quickly grew and overtaken his body. He was started on intensive chemotherapy straight away, which helped shrink the tumour in his stomach but wasn’t effective against the cancer in the bones of his face.

Tramaine lost his eyesight at 2 years old.

He was then started on another type of chemotherapy and amazingly this started to reduce the cancer in his face and bones . In January 2022, Mainey’s tumour was small enough that he was able to move on to the next stage of treatment and he had a huge, 12 hour surgery to remove the tumour from his abdomen. The tumour was attached to his kidney and wrapped around his aorta. They were told they had removed the whole tumour, but a scan two weeks later showed he still had some tumour there . On to the next stage of treatment.

Tramaine was then sent to Sheffield Children’s hospital to have his stem cells harvested, before having incredibly high doses of chemotherapy to completely wipe out his immune system, before his stem cells were put back in.

Tramaine then had to isolate for 4 weeks and had radiotherapy and immunotherapy to ensure he was completely cancer free.

If you’ve got to this point, thank you!

Can you believe that this is actually the short story? This doesn’t include the endless infections, 5 central line operations, countless scans and more blood and platelet transfusions than you’d want to count!

In February 2023 Tramaine got to ‘Ring the Bell’ for the end of treatment!

And in April 2023 his family received the news they never thought they would get! HE WAS CANCER FREE!!!!

Almost 3 months of not worrying that their beautiful boy might leave them!

However on Thursday 13th July they received the results from Mainey’s most recent tests..

Mainey has relapsed, treatment is not going to get rid of it but it will give them a little bit more time together! We want to help make that time amazing!

We love you!