Miles 4 Marybeth

My mother, Marybeth Freund, passed away from Creutzfeldt-Jakob Disease (CJD), an incurable and fatal neurological disease. Her decline, which spanned a little over a month, followed by her death, broke the hearts of her family and friends. She lived her life for her family and friends. Even in her final weeks, as she struggled to communicate, she spent nights concerned that we were spending too much time in hospitals or that we were not getting enough to eat. During the last week that she could speak, she used much of her strength to say, "I love you" every time she saw us. She was a passionate and selfless person, always putting others first as a wife, mother, and friend. When she found out she was ill, she made sure to reiterate two statements that have become mottoes in my life:

1. Don't waste a minute.
2. Never give up.

So, this effort is my intention to try to heed her advice one more time. Watching my mother battle CJD was the toughest experience of my life. The disease is truly cruel. There is not enough information published to easily or certainly diagnose it until it is oftentimes too late. The disease forces you to watch someone you love quickly lose their ability to communicate, see, take care of themselves, and eventually control their body. By the time my mom had passed, she had lost the ability to control most of her movements, including opening her eyes. It is my intention to do everything I can to prevent someone else from going through a similar horrific experience. This group is organized to raise money and awareness for a disease that we were told occurs around 4 times a year at Allegheny General, but continues to be shrouded in mystery.

My vision for this group is to raise money by the mile for the CJD Foundation. All donations will go directly to the Creutzfeldt-Jakob Disease Foundation. The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by Prion Disease, raise awareness, and support medical education and research. You can learn more at https://cjdfoundation.org .


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Donations

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  • Amy Gardner 
    • $10 
    • 24 mos
  • Amy Gardner 
    • $10 
    • 27 mos
  • Amy Gardner 
    • $10 
    • 28 mos
  • Amy Gardner 
    • $10 
    • 29 mos
  • Amy Gardner 
    • $10 
    • 30 mos
See all

Organizer

Greg Freund 
Organizer
Pittsburgh, PA
Creutzfeldt-Jakob Disease Foundation Inc (CJD Foundation) 
Registered nonprofit
Donations are typically 100% tax deductible in the US.
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