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In Memory of Mícheál

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We are looking to raise €1000 for Jack and Jill, Hugh's House, Milford Hospice and the Irish Cancer society

What are we doing?
Ever heard of Route66? Do you know what its distance is? Its 3,669.8km in length and that's the distance we are challenging ourselves to complete by 23rd January 2021.  On this date, Mícheál would be celebrating his first birthday. Sadly he won't be here, however we WILL be celebrating this date for him. We have plans for smaller fundraising events from now until then however due to Covid-19, we just have to wait to hold them. 

Why are we raising  funds? 
At our 32 week scan, we were told of an anomaly with our baby but with all our tests, scans etc, no one could tell us nor prepare us for what was truly going to come our way. Our beautiful baby boy Mícheál was born on 23rd January 2020. He certainly let us all know he had arrived. Within 2 hours of birth, he was having seizures and the doctors were doing their best to control them. Mícheál had an MRI and an EEG in Temple Street Hospital to find out why the seizures were happening and we were given the devastating news when he was just 5 days old that he had a suspected genetic condition which was life limiting. Again, no doctor could tell us how long or short his life would be. 

Mícheál was transferred Temple Street Hospital and we were so lucky to be given the opportunity to stay at Hughs House. This house is a home from home very close to the hospital. We could stay at the house, rent free  for as long as we needed to be there, to focus on getting Mícheál stabled to be moved to Limerick Hospital. We spend over 2 weeks in Temple Street before getting our much wanted transfer to Limerick Hospital. We spent another 2 weeks in the hospital before Mícheál was discharged. We came home with our dedicated nurse Hillary who knew Mícheál very well. We had an immense amount of support from the palliative care team in Milford Hospice. We had a fantastic night nurse named Anne from the Irish Cancer Society and we had several  nurses from the Jack and Jill Foundation, whose coordinator, Mags couldn't do enough for us. Together with these amazing people we had just over 4 weeks at home with Mícheál and made so many precious and vital memories with his big sister Órnaith. Mícheál passed away in our arms on 31st March 2020 aged 9 weeks old. 

Without these charities and the people involved, there is no doubt in our minds that things would have been very different for us and on the negative side. We are as strong as we are due to the abundance of support given to us by all the charities. This is why we are fundraising! We want to pay it forward to the next family who needs their support.

https://hughshouse.ie/

https://www.jackandjill.ie/

https://www.milfordcarecentre.ie/

https://www.cancer.ie/

Donations 

  • STEPHEN GRIFFIN
    • €30 
    • 3 yrs

Fundraising team (2)

Joe OGorman
Organizer
County Clare
Gemma OGorman
Team member

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