Making Memories of Marlo

Marlo Naumann is a darling baby girl who was born with epidermolysis bullosa, a rare disorder that makes her skin as fragile as a butterfly's wings.  Every day she lives in pain with just routine activities like moving, getting dressed, and even eating.  Her skin is covered in painful sores.  She is constantly in danger of overwhelming infection that will likely, one day, take her life.  There is no cure.  Wound supplies cost $5,000/month to cover her little body.  Doctor's visits, specialists and therapy will be her life and, therefore, her family's life. Childcare is impossible due to the intensive nature of Marlo's needs.  Thus, there are not only crushing expenses, but also the family of 5 must make do with one less income as her mother, Jackie, cares for her, treasuring the very brief time she will have with her beautiful daughter.  This is a time they need to make memories of Marlo, not struggle to make ends meet.  I hate that there is not much the medical community can do to help Marlo, but I want to at least help this kind, loving family to better be able to enjoy the time they do have together by decreasing their financial burden.  Please join me by giving your support in any amount you feel moved to donate.


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  • Corey Kohnke 
    • 200 $ 
    • 43 mos
  • Kat Trago 
    • 750 $ 
    • 43 mos
  • Anonymous 
    • 20 $ 
    • 43 mos
  • Anonymous 
    • 250 $ 
    • 43 mos
  • William Bernecker 
    • 200 $ 
    • 43 mos
See all

Organizer and beneficiary

Lisa Seefeld 
West Bend, WI
Jackie Naumann 
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