Hi my names Jo Jo and I fell in love with Milo when I first laid eyes on him in the reception playground Milo has autism but we have now discovered he has Metachromatic leukodystrophy which is an incurable disease with a life expectancy of 5-10 years old MILO is 5 he is one of 4 children 2 of which have special educational needs Milo’s baby sister saskia who is 2 years old also has MLD but thankfully as she’s not developed any signs yet she can be saved and is to start stem cell and chemotherapy in February next year

my heart breaks for this family so I felt compelled to help in some way

this just giving is to help the family make memories for some special days out maybe a little uk break and for help with the costs of travel ect to the hospitals and everything that goes with having two terribly sick children

thank you from the bottom of my heart for reading even just £1 each would help

thank you from the bottom of my heart I can’t imagine what they are going through but maybe we can help soften the blows x