For such a gentle person, life really did deal him some horrible cards. Unfortunately, Lucas was suffering from the illness, Marfan Syndrome, which sadly also took the lives of some of his loved ones, including his mother and brother only a few years apart from each other, he adored them and was always talking about them. Marfan syndrome is a disorder of the body's connective tissues, a group of tissues that maintain the structure of the body and supports the internal organs and other tissues. One of the most common symptoms of Marfan Syndrome is being tall and Lucas was our gentle giant. Although Marfan syndrome is rare, affecting about 1 in 5,000 people in the UK, it's one of the most common connective tissue disorders, however, there is not yet a cure, and so treatment is focused on managing the symptoms and reducing the risks of complications that come with the syndrome.
Sadly, Lucas also lost his dad 4 days before he passed away. Our hearts and thoughts go out to Lucas’s family at this deeply sad time, especially his Brother, Connor and his Uncle, Robert.
Lucas was taken from us far too soon. The only things we can do is to keep his memory living on and give him the best send-off that we possibly can, he deserves the best. Therefore, we please ask that if you are able to donate, no matter how big or small, towards Lucas’s fundraiser for his funeral and send off, we would all be so grateful. We want to be able to give what we can to the man who gave so much. We love you Lucas.
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