After three years of being very sick with lyme, I was finally diagnosed in December of 2016. I immediately began treatment with a lyme specialist in Seattle (out of pocket); though I had greatly improved with her treatment, the week of prom my senior year things went downhill. I woke up with amnesia, confusion, short-term memory loss, warped sense of time..and many others. I was bedridden, but still made it to prom!!
The doctor treating me at the time called us and said I needed IV antibiotics as soon as possible - those could get to my brain, and without them I’d begin seizing or develop MS/ALS - though she is unable to provide them. My parents searched relentlessly and found me a new doc in California who is able to give me the drugs I need. I am now 8 months into his treatment!! His treatment is working miracles on me, though my infection is so prominent it adapts to these drugs so quickly.
As I explain in my recent update on here, I am currently in dire need of IV invanz..my doctor prescribed me it last month and due to Aetna insurance not covering it, we have waited to put me on it. Invanz costs $143 for one dose, which I need every single day - that’s $4,100 for one month, which I may need several of.
Just knowing we are not alone in this fight is sensational. We love you all. We thank you from the bottom of our hearts.
If you would like to read about my story in depth, visit: https://tayahanson22.wixsite.com/meganslymestory
Some resources for quick facts on Lyme:
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