Megan’s Chordoma Journey

Thank you for taking the time to read about Megan’s most recent diagnosis and the journey ahead. My sister is resilient and independent, but also knows there is strength in numbers. She wishes to allow friends and family to know her story and cover her in prayers during this time.

 

Megan recently was having trouble with double vision and was sent for an MRI in December 2021. We received the very unexpected report that a cancerous skull based tumor was found. Chordoma is a rare cancer with a one in a million diagnosis in the United States. Megan’s tumor is considered aggressive due to her young age and size of the mass. It wraps around the carotid artery, causing some narrowing of the vessel. Further imaging has shown that the cancer has not metastasized.

 

We are in touch with the Chordoma Foundation who have been absolutely wonderful with information and follow up. We will be going for a consult with a Neuro-Oncologist in Chicago who is familiar with Chordoma tumors next week to learn our recommended path.

 

Some have reached out to ask how they can help and we appreciate and are humbled by the support. I decided to set up this go fund me for Megan should you choose to help her financially. She will use the money toward medical expenses and travel back and forth to Chicago for appointments. Most importantly, please keep her in your thoughts and prayers. Thank you for your love and friendship.